Yesterday (16.06.14) the European Haemophilia Consortium (EHC) held one of their regular Round Table meetings. These events are a fantastic opportunity for healthcare professionals, patients, patient organisations and pharmaceutical companies from across Europe to come together and discuss bleeding disorders. The topic for yesterday’s meeting was von Willebrands Disease (vWD)
The event was opened by Prof Paul Giangrande (Oxford University Hospital), who raised the question of whether it really was appropriate to refer to vWD as a disease. He wondered if a term like “deficiency” or “disorder” might be more appropriate. He felt that too often physical explanations for menorrhagia (abnormally heavy bleeding at menstruation) were looked for before a bleeding disorder was considered. He also thought that patient organisations had an important role to play in raising awareness to tackle that problem.