Monthly Archives: June 2014

EHC meeting on von Willebrands raises important questions

Dan Farthing in Brussels on his way to the EHC Roundtable to find out more about von Willebrand's Disease

Dan Farthing in Brussels on his way to the EHC Round Table meeting to find out more about von Willebrand’s Disease

Yesterday (16.06.14) the European Haemophilia Consortium (EHC) held one of their regular Round Table meetings.  These events are a fantastic opportunity for healthcare professionals, patients, patient organisations and pharmaceutical companies from across Europe to come together and discuss bleeding disorders.  The topic for yesterday’s meeting was von Willebrands Disease (vWD)

The event was opened by Prof Paul Giangrande (Oxford University Hospital), who raised the question of whether it really was appropriate to refer to vWD as a disease.  He wondered if a term like “deficiency” or “disorder” might be more appropriate.  He felt that too often physical explanations for menorrhagia (abnormally heavy bleeding at menstruation) were looked for before a bleeding disorder was considered.  He also thought that patient organisations had an important role to play in raising awareness to tackle that problem.

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