Today is World Haemophilia Day – building a family of support
The 17th of April every year is World Haemophilia Day. This year’s global theme of ‘building a family of support’ is something we are strongly in favour of at Haemophilia Scotland. Our mentoring and events programmes are all about helping the community come together in Scotland to provide mutual support.
Yesterday, we attended the European Haemophilia Consortium World Haemophilia Day event in Dublin. We really appreciate this chance to come together as a family of patient organisations and talk about the big issues we all face – in this case the importance of patients in tendering for clotting factor products.
Today, we are delighted to have been invited to join the team at the Glasgow Haemophilia Centre for their World Haemophilia Day celebrations. Glasgow is famed for its hospitality – as everyone who comes to the World Federation of Hemophilia Congress in 2018 will discover. Today that hospitality means we will be enjoying a vintage tea party!
On Saturday the 25th we are holding our own World Haemophilia Day Event. A dedicated band of fundraisers are “Walking RED Malawi” from Blantyre to Glasgow Green. They are walking in tribute of the historic ties between Scotland and Malawi, first forged by David Livingstone who used to walk the same route to attend University. All funds raised will support our work with the newly established patient association in Malawi. It is not too late to sign up if you would like to take part.