EHC meeting calls for the eradication of Hep C for people with bleeding disorders

EHC - European Parliament - Dan

Haemophilia Scotland CEO, Dan Farthing-Sykes, on his way into the European Parliament for the EHC Round Table meeting on HCV and Haemophilia.

Yesterday was the latest of the European Haemophilia Consortium’s (EHC) fantastic round table meetings.  Held in the European Parliament the meeting gathered patients and experts from all over Europe to discuss Hepatitis C and Haemophilia.

It was clear from the discussion that Scotland’s record on treating hepatitis C is good.  In many ways Scotland is leading the way with Ireland and Portugal.

The meeting heard how the success rates of the new Direct Acting Antiviral (DAA) treatments, along with their improved tolerability and simpler administration, has made the goal of eradicating hepatitis C in people with bleeding disorders achievable.  The health economics mean that it is already a cost effective step to take.  However, it will only be achieved where clinicians and patients work together to make an effective case to Government.

As well as some extremely informative clinical presentations there were two excellent presentations from people who were infected.

You can read our full report from the meeting here.

3 comments

  • Hi Dan, A BIT DISTURBED BY COMMENTS RE COMPENSATION DELAY. AM I CORRECT IN SAYING THAT PAYMENTS MAY BE DELAYED UNTIL 2017? IS THERE ANY CHANCE THAT PAYMENTS WILL BE RETROSPECTIVE? I AM 83 YEARS OLD SO YOU WILL UNDERSTAND MY ANXIETY, I AM AN AULD MAN ON THE SLIPPERY SLOPE. Kind regards, Harry

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  • Hello Harry, we are trying to get some clarification on timetables at the moment. We think there is a bit of confusion though. The Scottish Government are trying to get a deal from the Department of Health (England) which will let them use the Skipton Fund and MFT to make the new, higher, payments in the short term. That will give them time to set up the new Scottish system, which they are saying could take until 2017. The problem is, until the DH sign off the deal the Scottish Government can’t say when the payments can start. This is exactly the sort of problem that we hope will be avoided by setting up the Scottish scheme. You might want to think about asking your local MP to write to Jeremy Hunt and Jane Ellison asking them to sign the deal and let the payments start.

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