
We seek to work closely with Members of the Scottish Parliament of all parties and from all over Scotland.
The MSPs we have most contact with are the members of the Health and Sport Committee, especially Richard Lyle MSP who has been a particularly good friend to Haemophilia Scotland ever since we were established.
We also are also a founding organisation of the Cross Party Group on Rare Diseases. Bob Doris MSP and Malcolm Chisholm MSP do a fantastic job of co-chairing the Group.
MSPs are constantly contacted by people in their constituency or region on an incredibly large range of issues. Bleeding Disorders are rare conditions. If we are to stay in the minds of MSPs we have to work even harder to keep them up to date and informed. As an organisation we regularly contact MSPs but they always tell us that they take most interest in issue which are brought to them by potential voters. Email means that it is now very easy to contact an MSP. We recommend the site Write to Them which uses your postcode to put you in touch with all your elected representatives. Please remember to copy us into your email using hello@haemophilia.scot. Regular contact with MSPs on a range of issue affected people with bleeding disorders is the best way to make sure that they have a well rounded understanding of our needs.
Also in this section