Category Archives: Scottish Government

Scottish Government timetable for #ContaminatedBlood financial support payments

Applecross Pass

The road to improved financial support payments has already been long and winding.

Last week, those who represented the patient point of view during the financial support review group met with Shona Robison MSP, Cabinet Secretary for Health, Wellbeing, and Sport.  Several of us had been raising serious concerns about the fact that the new payments, announced in March, have not started yet.  Many Haemophilia Scotland members are in urgent need of this additional support. Every day of delay causes additional stress and anxiety.

At the meeting we were told that different groups can expect payments at different times.  If you are currently receiving a payment then the increase is estimated to come in October 2016. However, this timetable is subject to the issues set out below.  For example, the boards of the UK-wide bodies have not yet agreed to this timetable.

Those who will get a new support payment will have to wait until the new Scottish scheme is set up in April 2017.

Following the meeting, the Scottish Government have produced this short paper which details the expected timetable and gives more information.

Payments expected in October 2016 (backdated to April 2016 where applicable)

  • Stage 1 payment to increase from £20,000 to £50,000 (an additional £30,000 for those already in the scheme).
  • Stage 2 payments to increase from £14,749 to £27,000.
  • HIV payment to increase from to £27,000
  • Co-infected payment to increase from £14,749 £29,498 to £37,000

Payments to be start with the new scheme in April 2017 (not backdated)

  • Widow(er)s’ pensions
  • The new Scottish discretionary grants.  This will replace the Caxton Foundation and the discretionary element of the MacFarlane Trust (MFT). It will honour existing commitments from these successor organisations.

After April 2017 payments will be made from Scotland.  The scheme is likely to be administered by National Services Scotland (NSS) which is effectively an all Scotland NHS Health Board.  There will be an advisory group including stakeholders but other governance arrangements aren’t clear yet.

Issues to be overcome before October 2016

Before the UK schemes can be used to make the new Scottish payments there are some hurdles to be overcome.  These are what are causing the current delays.

  • Westminster must pass Tax Orders so that none of the payments are liable for tax.  This has to happen whichever mechanism is used to make the new payments.
  • To use the existing scheme to make the new payments all four nations of the UK must agree.  At the moment only Scotland is signed up.  We have asked all three of the other Government not to stand in the way of Scottish payments and have had these replies from England and Wales.  There have also been two stories in The Sunday Herald to put pressure on England in particular.
  • For the payments to be made in October there must also be agreement from the Boards of the UK-wide schemes.

Issues to be overcome before April 2017

Before the Scottish scheme is established there are some important decision to be taken including,

  • Changes to the threshold for receiving ongoing support.  The threshold is to depend on whole health impact of infection rather than focusing on liver damage alone.
  • A reexamination of the ability of those with incomplete medical records to apply.
  • An appeals procedure for those who think they should be in the Scottish scheme.
  • A procedure for converting ongoing payments into a lump sum settlement.
  • How the new discretionary scheme will operate in practice.

Groups will be established shortly to look at these points.

This article was amended on 19 August 2016 following a request from the Scottish Government make it clearer that at the time of publication none of the boards of the UK-wide bodies had given formal agreement to implement the new Scottish payments.

NOhep Day 2016

Dan Farthing-Sykes, Jeff Frew, Robert Girvan, Sam Baker, Shona Robison MSP, Petra Wright. Credit: Petra Wright, Hep C Trust.

Contaminated Blood Update from the Scottish Government

Screen Shot 2016-06-24 at 14.18.21

As soon as Shona Robison MSP was reappointed as Cabinet Secretary for Health, Wellbeing, and Sport, we wrote to her asking about progress on implementing the new contaminated blood support payments for Scotland and other recommendations. We have just received a reply which gives details about the current situation.

You can read her letter in full here.

In summary her letter says,

  • The Scottish Government is negotiating with the UK Government to use the current, UK-wide, schemes (such as the Skipton Fund and MFT) to make the new payments without having to wait for the new Scottish scheme to be set up.  Until the negotiations are finished they can’t say when they payments will start.
  • They are also working to ensure the payments are treated fairly for tax and benefit purposes.
  • Their is an issue about being able to backdate some of the new payments without them being liable for income tax.
  • A decision on how the new Scottish scheme will be delivered will be taken over the summer and it will be up and running in 2017.
  • The clinical review group, which will look at the eligibility criteria for the schemes ,including access to ongoing payments and the widow’s pension, will be set up once the interim arrangement are up an running.  As well as clinicians it will include lay people and academics.
  • Work on being able to convert an entitlement to a lump sum will start as soon as possible.
  • The Penrose Short Life Working Group is working on how to trace and offering testing to people who may not know they were infected.  The Scottish Government are expecting to receive their report soon.

We are hoping to meet the Scottish Government as soon as possible to discuss these issues.  We have also written to the Department of Health (England) and several Scottish MPs calling for the negotiations to be concluded quickly so that people can start receiving the new payments as soon as possible. We are hoping to travel to London to reinforce this point.

Shona Robison in the Scottish Parliament

26 Mar 2015, Edinburgh, Scotland, UK — Edinburgh, United Kingdom. 26th March 2015 — Scottish Cabinet Secretary for Health Shona Robison makes a ministerial statement in the Scottish Parliament after the publication of the Penrose Inquiry on the contaminated blood scandal. — Scottish Health Secretary Shona Robison in a ministerial statement on the Penrose Inquiry into NHS patients being infected with Hepatitis C and HIV through contaminated blood in the 70s and 80s, has promised continued support for victims. — Image by © Ken Jack/Demotix/Corbis





Who will be the Cab Sec for Health, Wellbeing, and Sport?

Shona Robison in the Scottish Parliament

26 Mar 2015, Edinburgh, Scotland, UK — Edinburgh, United Kingdom. 26th March 2015 — Scottish Cabinet Secretary for Health Shona Robison makes a ministerial statement in the Scottish Parliament after the publication of the Penrose Inquiry on the contaminated blood scandal. — Scottish Health Secretary Shona Robison in a ministerial statement on the Penrose Inquiry into NHS patients being infected with Hepatitis C and HIV through contaminated blood in the 70s and 80s, has promised continued support for victims. — Image by © Ken Jack/Demotix/Corbis

The position of Cabinet Secretary for Health, Welling, and Sport is vital for people with bleeding disorders in Scotland.  We’ve been fortunate that in recent years we’ve had a succession of people in that position  who have taken a particular interest in bleeding disorders and the contaminated blood disaster including Nicola Sturgeon MSP, Alex Neil MSP, and most recently Shona Robison MSP.

Just before the Scottish Parliament election the Scottish Government announced that they would be implementing the recommendations of the Financial Support Review Group and increasing payments to those affected by the contaminated blood disaster.  We don’t yet know if Shona Robison will continue as Cabinet Secretary.  However, whoever is in that job we are expecting an early announcement about how and when the new payments will be made and if they will be backdated to the beginning of the financial year. We are also keen to begin the review of eligibility criteria and to establish a mechanism for exchanging on-going payments for a lump sum as a matter of urgency.

A new Scottish Government has to be formed within 28 days of the 5 May election (2 June).  The First Minister will take office after being nominated by the Scottish Parliament and appointed by the Queen. Scottish Ministers, including for Health, Wellbeing, and Sport can then be named.

Scottish Govt. will implement Scottish Contaminated Blood Support recommendations

Scots Health Secretary promises action on NHS infected blood scandal

26 Mar 2015, Edinburgh, Scotland, UK — Edinburgh, United Kingdom. 26th March 2015 — Scottish Cabinet Secretary for Health Shona Robison makes a ministerial statement in the Scottish Parliament after the publication of the Penrose Inquiry on the contaminated blood scandal. — Scottish Health Secretary Shona Robison in a ministerial statement on the Penrose Inquiry into NHS patients being infected with Hepatitis C and HIV through contaminated blood in the 70s and 80s, has promised continued support for victims. — Image by © Ken Jack/Demotix/Corbis

The Scottish Government has just announced that it has accepted the key financial recommendations of the independent Financial Review group at an estimated cost of £20million.

The recommendations were co-developed as part of a Scottish review process.  Details of that process and the recommendations made by the group can are available here.

Responding to the news our Chair, Bill Wright, has said,

This announcement is a watershed moment for everyone involved in this long running campaign. There are three key elements of the announcement which are particularly welcome.

Bill takes a standFirstly, the increase in ongoing support for those who are most unwell means that we can have some confidence that they will no longer be living in poverty as a result of their infections.

Secondly, introducing pensions for widows and widowers is an important recognition that they suffered losses in their own right and that they should have a secure future.

Thirdly, the upfront payment of an additional £30,000 to all those who will not receive ongoing support goes some way towards recognising that everyone who has lived with these infections has suffered physically, mentally, or financially. We will be continuing to work very hard on their behalf to ensure that they benefit as much as possible from the new scheme and the review of the debilitating physical and mental health conditions they have developed.

No scheme can truly make up for the loss of life, and health, caused by this disaster. The Cabinet Secretary has acknowledged that there is more that to be done once these schemes move to Scotland. However, today, we have made historic progress.

This new, Scottish, approach stands in stark contrast to the deeply concerning proposals currently being consulted on for the rest of the UK.

We are grateful to everyone who has contributed to making this very real progress in Scotland.

We appreciate that a lot of people reading this news today will be from other parts of the UK.  You can find out more about the English led review and campaign responses to it at these website.

Scottish Government backs our Malawi Diagnosis Project

This slideshow requires JavaScript.

We are delighted to have been successful in the latest round of the Scottish Government’s Small Grants Programme.  We will be receiving funding for a volunteer led diagnosis project in partnership with our friends in the Haemophilia and Allied Bleeding Disorders Society in Malawi.

The aim of the project is to facilitate access to appropriate treatment for bleeding disorders in Malawi following a laboratory diagnosis.  If the project is successful, more people with a potential bleeding disorder in Malawi will be aware of where they can go for a diagnosis and treatment, and more will have a laboratory diagnosis of their condition and have that diagnosis recorded on a National Haemophilia Register. However most importantly, more people will have access to specialist Haemophilia care and treatment.

Securing funding for the project has been made possible by the work of some dedicated Haemophilia Scotland volunteers, including everyone who took part in our Walk RED Malawi fundraiser last year (watch this space for information about this year’s event).  To make the project a success we will need to continue raising money with events like this.  The text donate details for supporting this project have changed.  To donate just text MALA31 to 70070.

Announcing the grant, Humza Yousaf MSP, Scottish Government Minister for Europe and International Development, said,

The Scottish Government’s Small Grants Programme helps some of the world’s most vulnerable people. It also provides support to Scottish organisations to help them continue to be good global citizens.

Chair, Network of International Development Organisation of Scotland (NIDOS), Jamie Morrison, said,

Small organisations are often uniquely well placed to respond to distinct community needs, and the recognition of their valuable contribution to poverty alleviation and economic growth is warmly welcomed.

A public consultation to help shape Scotland’s International Development Fund in the future is currently underway and will run until 20th May 2016. A number of public discussion events are also taking place across Scotland – event details can be found here.


Bill Wright is speaking to the Health and Sport Committee tomorrow morning


Image © Scottish Parliamentary Corporate Body – 2012. Licensed under the Open Scottish Parliament Licence v1.0.

The Scottish Parliament’s Health and Sport Committee has invited our Chair, Bill Wright, to give evidence to them tomorrow morning from 9.30am in Committee Room 1. The Committee are looking at “Penrose Inquiry Report – Progress Update.”  It has been almost a year since the Penrose Inquiry Final Report was published, so now is a good time to look back and consider what has been achieved so far.

Bill will be giving evidence as part of a panel including The Hepatitis C Trust and the Scottish Infected Blood Forum.  All three organisations have submitted written evidence in advance which you can read on the Scottish Parliament website.  Bill is hoping to be able to stress the urgency of getting new financial arrangements up and running as quickly as possible.

It is also likely that the Committee will consider the work of the Scottish Financial Support Review Group.  You can still find all the minutes from those meetings, as well as the recommendations to the Scottish Government, on our website.

Later in the day, the Committee will also speak to Shona Robison MSP, Cabinet Secretary for Health, Wellbeing, and Sport, and Professor Goldberg.  He is leading the Penrose Inquiry Short Life Working Group on implementing the Penrose Report’s sole recommendation.

If you’d like to watch what happens live, it will be covered by, just click on Committee Room 1 at 9.30am.



Department of Health (England) letter causes confusion

The National

At the end of last week our members started receiving letters from the Department of Health (England) inviting them to take part in their consultation on their proposals for changes to the contaminated blood financial support scheme for England.  The story is covered in today’s edition of The National,

The letters were extremely confusing because they made no reference to the fact these decisions are responsibility of the Scottish Government or that work towards reforming the schemes is much more advanced north of the border.

Many of our members were also concerned that the Department of Health (England) proposals, widely regarded as cuts and inferior to the Scottish proposals, would be forced on Scotland.

We have now received this official clarification of the position,

This is a public consultation to which anyone with an interest can respond. However, the proposals for reform and the additional money committed by the Department of Health are for those infected in England.

The Department of Health’s consultation is separate from the Scottish government’s process to review financial support arrangements in Scotland. It will be for the Scottish Government to decide on what support arrangements are most appropriate for Scotland.

The Department of Health will continue to collaborate with their opposite numbers in the devolved administrations to align as far as possible and ensure the best possible outcomes for those affected.

The Department of Health will analyse its consultation responses geographically as far as possible, and results will be shared with all the UK Health Departments.

The Scottish Government has remained committed to its considerations of the proposals from the Scottish Financial Support Review Group and to making an announcement before 17 April (World Haemophilia Day) this year.

If you were infected in England then it is likely that the results of the Department of Health (England) consultation will affect you, and you may wish to take part in the consultation.  If you don’t know where you were infected then you need to work out where you were first given a pooled plasma blood product.

The Caxton Foundation have helpfully produced two documents to help people understand the Department of Health (England) proposals,

The attitudes of campaigners in England to the consultation range from putting in strong submissions opposing the proposals through to those who are boycotting the process in favour of pursuing legal alternatives.  Similarly in Scotland some take the view that it is a matter for campaigners in England but others are keen to complete the questionnaire, even though it is only applicable in England.

« Older Entries Recent Entries »