Category Archives: Fundraising

Guest blog: Darren Ford on his fundraiser skydive for Haemophilia Scotland

Darren Ford is the Facilities Co-ordinator at our Edinburgh office and raised just over £500 for a fundraiser skydive for Haemophilia Scotland. Contact Glenda at the office if you wish to do your own fundraiser on behalf of Haemophilia Scotland.

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Darren Ford , feeling relieved, with his tandem instructor following his brave leap from the plane.

After speaking with some of the lovely hard working staff at Haemophilia Scotland, I signed myself up for Skydive to raise some funds to support the great work they do. Now I should probably mention at this point I have a fear of heights so perhaps not the smartest move I’ve made.

The whole process was really easy, made more so because Haemophilia Scotland team were so helpful, along with the staff running St Andrews Skydive. It was intended to be a Santa Skydive but due to bad weather along with my luck we had to reschedule a few times.

We managed to finally get the jump completed on the 27th August 2017. I can honestly say it’s one of the best experiences I’ve ever had, and its all for a good cause! It’s no where near as bad as I thought it would be and it was highly exhilarating. I managed to raise over £500, and I would like to take this opportunity to thank everyone that donated. I hope you enjoy the video!

Raise funds while you shop – it won’t cost you a penny!

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Before you click “buy” on that last minute Valentine’s Day gift, did you know that whenever you buy anything online you could be raising a free donation for Haemophilia Scotland? At easyfundraising, there are over 3,100 shops and sites on board ready to make a donation when you shop with them, including Amazon, John Lewis and Sainsbury’s and it doesn’t cost you a penny extra! To get started, all you have to do is:

  1. Join. Head for the Haemophilia Scotland easyfundraising page and sign up for free.
  2. Shop. Every time you shop online, go to easyfundraising first, pick the retailer you want and start shopping.
  3. Raise. After you’ve checked out, that retailer will make a donation to Haemophilia Scotland and it won’t cost you a penny extra!

Please help us raise as much as possible – there are no catches or hidden charges and we will be really grateful for your donations.

Thank you for your support!

Raise money for Haemophilia Scotland when you do your Christmas shopping with easyfundraising

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Did you know that whenever you buy anything online – from your weekly shop to your annual holiday – you could be collecting free donations for Haemophilia Scotland?

There are over 3,000 shops and sites on board ready to make a donation, including Amazon, John Lewis, Aviva, thetrainline and Sainsbury’s – it doesn’t cost you a penny extra!

It’s as easy as 1, 2, 3…

  1. Head to https://www.easyfundraising.org.uk/causes/haemophiliascotland/ and join for free.
  2. Every time you shop online, go to easyfundraising first to find the site you want and start shopping.
  3. After you’ve checked out, that retailer will make a donation to your good cause for no extra cost whatsoever!

There are no catches or hidden charges and Haemophilia Scotland will be really grateful for your donations.

Malawi joins the World Federation of Hemophilia

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We are delighted that our friends in the Society of Haemophilia and Allied Disorders in Malawi continue to go from strength to strength.  They were accepted as an Associate Member of the World Federation of Hemophilia (WFH) at Global Congress in Orlando in July.

WFH President, Alain Weill, said,

I am extremely pleased to welcome the Society of Haemophilia and Allied Disorders (SHAD) in Malawi to the WFH family of National Member Organisations (NMOs). The accreditation of SHAD as an NMO is the result of relationship building with Malawi by WFH staff and volunteers that dates back to 2013. I am thrilled that this effort bore fruit, and that we will continue to work closely with SHAD to support their efforts to improve care for patients with hemophilia and related bleeding disorders in Malawi. I would also like to extend my thanks and gratitude to Haemophilia Scotland for all the excellent support they continue to provide to SHAD and its staff.

Haemophilia Scotland CEO, Dan Farthing-Sykes, said,

Haemophilia Scotland is honoured to have played a part in supporting our friends at SHAD and are delighted to see them get this international recognition.  Working with SHAD to deliver our joint Malawi Diagnosis Project has show just how much can be achieved when organisations like ours come together.  We look forward to many more years working together to improve the diagnosis, treatment, and care of people with bleeding disorders in Malawi. Anyone wanting to support this work can donate to the project directly using Just Giving.

The WFH constitution prohibits Haemophilia Scotland from becoming an NMO ourselves but we work closely with the WFH as part of our international work.  We are particularly excited that the WFH Congress will be in Glasgow in 2018 and will be working with The Haemophilia Society to make that a success.

Mark get the press for fundraising run

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Fantastic work Mark! Well done and thank you!

Mark Scott has had some fantastic coverage in the Blairgowrie Advertiser.

He raised nearly £130 for our Contaminated Blood Memorial Fund as part a fantastic TEAMophilia effort at the Edinburgh Marathon.

Mark’s JustGiving page is still live if you’d like to give and help him get raise over £130.

Thank you Mark, the other runner and everyone who has given so far.

Find our more about fundraising for Haemophilia Scotland here.

World Haemophilia Day 2016 #WHD2016 marked by launch of Malawi Diagnosis project and awareness raising at science festivals

 

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Yesterday (17 April) was World Haemophilia Day.  Our sister organisations all over the world were marking the day with an amazing range of activities.

Here at Haemophilia Scotland, we like to use World Haemophilia Day to raise the profile of bleeding disorders in Scotland and of the work we are doing to improve treatment and care in the rest of the world.

This year we are launching our Diagnose Malawi Appeal and are raising awareness at science festivals.

Diagnose Malawi Appeal

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We are working in partnership with the Society of Haemophilia and Allied Disorders (SHAD) in Malawi to improve diagnosis, treatment, and care in their country.

All over the world 1 in 10,000 babies is born with Haemophilia A.  However, despite having a population of well over 16 million there was nobody in Malawi with a laboratory diagnosed bleeding disorder when the project started.

We have received funding from the Scottish Government to run the Malawi Diagnosis Project with SHAD.  There will be a public awareness campaign in Malawi, and training for hospital staff, to try and find suspected cases of bleeding disorders.  New clinics will then offer testing, and where appropriate, treatment.

As part of our funding application we pledged to raise some of the money we need through community fundraising.  Money spent on this project goes a long way.  For example, running a single test will cost £15.  By the end of the project we hope that between 216 and 360 people will have been tested. Our first fundraising target of £1,500 is the equivalent of paying for the first 100 test. However, your money will be used to support the whole project.

The easiest way to donate to the appeal is on Just Giving. Alternatively, you can donate fifteen pounds by texting ‘MALA31 £15’ to 70070.  If you’d like to give a different amount just change the amount in your text. We will be posting more about the project during our ‘Malawi May’ when there will also be a cultural event to find out more about the county we are working with.

Following the success of Walk RED Malawi last year there will be another event this year.  Details are being finalised. Please put the 17th of July in your diary. If you are interested in finding out more please email Emma Black to be put on the Walk RED Malawi mailing list.

Science Festivals

To raise awareness of bleeding disorders in Scotland we have been taking part science festivals.  We worked with Blackwell’s Bookstore to run a very successful crime scene investigation event as part of the Edinburgh International Science Festival.  All day, amateur sleuths were cracking clues to solve a murder, while improving their knowledge of bleeding disorders.

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Scottish Government backs our Malawi Diagnosis Project

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We are delighted to have been successful in the latest round of the Scottish Government’s Small Grants Programme.  We will be receiving funding for a volunteer led diagnosis project in partnership with our friends in the Haemophilia and Allied Bleeding Disorders Society in Malawi.

The aim of the project is to facilitate access to appropriate treatment for bleeding disorders in Malawi following a laboratory diagnosis.  If the project is successful, more people with a potential bleeding disorder in Malawi will be aware of where they can go for a diagnosis and treatment, and more will have a laboratory diagnosis of their condition and have that diagnosis recorded on a National Haemophilia Register. However most importantly, more people will have access to specialist Haemophilia care and treatment.

Securing funding for the project has been made possible by the work of some dedicated Haemophilia Scotland volunteers, including everyone who took part in our Walk RED Malawi fundraiser last year (watch this space for information about this year’s event).  To make the project a success we will need to continue raising money with events like this.  The text donate details for supporting this project have changed.  To donate just text MALA31 to 70070.

Announcing the grant, Humza Yousaf MSP, Scottish Government Minister for Europe and International Development, said,

The Scottish Government’s Small Grants Programme helps some of the world’s most vulnerable people. It also provides support to Scottish organisations to help them continue to be good global citizens.

Chair, Network of International Development Organisation of Scotland (NIDOS), Jamie Morrison, said,

Small organisations are often uniquely well placed to respond to distinct community needs, and the recognition of their valuable contribution to poverty alleviation and economic growth is warmly welcomed.

A public consultation to help shape Scotland’s International Development Fund in the future is currently underway and will run until 20th May 2016. A number of public discussion events are also taking place across Scotland – event details can be found here.

 

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