Category Archives: Women

#PressForProgress for women with bleeding disorders on #IWD2018

Today is International Women’s Day and Haemophilia Scotland is highlighting the important work of women around the world who are fighting for diagnosis and access to treatment for women with inherited bleeding disorders such as von Willebrands.  Working together on gender equality in treatment is integral to our partnerships with our friends in Kenya and Malawi.

To watch the full videos of this panel discussion of 5 different von Willebrand disease outreach programs and the keys to their success, and for hundreds more bleeding disorder resources, go to

The Haemophilia Scotland Women’s Group is proud to be hosting the Women’s Booth at the WFH Congress in Glasgow this May.  The booth will be showcasing amazing work from all over the world and providing a place for women with bleeding disorders to meet and exchange ideas.

Find out more about,


Make a difference for women at Congress

The Women’s Booth at the World Federation of Haemophilia Conference in May this year is, as some of you know, being hosted by Haemophilia Scotland.  Many of you are already aware and participating in our ongoing quilt project which will be displayed there.

Working in partnership with Glasgow Haemophilia Centre, we thought it would also be a nice gesture to recognise that no matter how little we have, some women and girls in the world have much less, particularly of the basic things we come to take for granted.

In many of the international communities, item such as pants, socks, sanitary wear, deodorant, shampoo, toothpaste, toothbrushes etc are luxury and commonly non existent items for many women.

We would like to collect some of these items and make them available to anyone who needs them during the conference and anything unused thereafter be sent to women and girls in Malawi and Kenya as part of Haemophilia Scotland’s ongoing programmes in these countries.

If you can and would like to donate any of the items mentioned above (or any other small items you can think may be useful) which could go into a small “goodie” bag for these girls and women, these are being collected at the Glasgow Haemophilia Centre and the Haemophilia Scotland Office.

Let’s make life a wee bit more comfortable for these girls and women with a great Scottish welcome!

If you wish any further information regarding this, please contact Nancy Brodie at the Glasgow Haemophilia CCC on 0141 211 5127.


Glasgow Centre’s “Girlie Day Out” a huge success

This slideshow requires JavaScript.

Glasgow CCC held the “Girlie Day Out” event on Saturday (24th February) in the St Mungo Museum.  It was a great afternoon organised for female patients, carers of people with bleeding disorders and any of their family members.

The day was well attended and started with a bit of lunch and some very short informative discussions around:

  • Women and girls bleeding problems (Dr Catherine Bagot, Consultant Haematologist, Glasgow)
  • Talking Red (Lynn Wild, Talking Red Ambassador)
  • Women and Girls Malawi and Kenyan Experience (Susan Warren, Honorary President Haemophilia Scotland)

Following these discussions the afternoon went on to some fun activities – manicures, henna tattooing, decoupage… finishing the day with tea, cake and bollywood dancing!!

Feedback from the event has all been positive and was evidently stacks of fun for all who attended!!!

A big thank you to all staff at the Glasgow Centre and the speakers who gave up their Saturday for this event.

Visit to the Rare Books Collection at St Andrews

On February 5, a few of us visited the University of St Andrews’ Rare Book Collection to see how women’s issues are portrayed in historical texts. Thinking ahead to the Women’s Booth at Congress in May, a lot of attention and focus will be on the present and the future, so the purpose of this visit was to encapsulate the past with the present and future,

providing one holistic overview.

This slideshow requires JavaScript.

The University of St Andrews is the oldest of the four ancient universities of Scotland and the third oldest in the English-speaking world. Founded in 1413, we were fortunate to have the opportunity to pore over books from as far back as the 1500s.

In doing so, we were able to see how women’s issues were portrayed in historical texts, which highlighted how far medicine and technology has advanced since then, leaving us optimistic about the progression of modern medicine.

We all thought the visit was worthwhile and we share our thoughts on the visit below.



The incredible level of detail. Note that the veins look like branches – Inspiration for the centrepiece for the Quilt Project.

Joan: Joan was intrigued with the sharp detail of the drawings. MRI scanners and the like are recent inventions that provide us with images of the interior of the human body. Historically, any research on the human body was done post mortem and an artist would illustrate the findings.


Susan was interested in the forceps illustration.

Susan: I was interested in the lift the flap illustration in the text book dated 1830. Basically, the illustration showed how to use forceps.  I had been very sick for 2 days before my son was born early at 38 weeks. My GP had the forceps ready as he thought I was too weak to deliver the baby alone. I had a great fear of anything like that and luckily my son was born without them. 4 months later he was diagnosed with severe haemophilia A, and I was diagnosed at the same time as having low factor levels.  Lucky for us both! Later, my GP remarked at how relieved he was about not damaging my son with using the forceps.  I added for me too – a reminder that childbirth is risky too for carrier mother.


Alex R was impressed with the printing

Alex R: Alex was really intrigued with how the illustrations were printed and was cleverly able to distinguish the difference between the laborious manual printing process of the 1500s to the machine printing of the 1800s.



Alex W: The book that stood out the most to me was a book from the 1500s that had illustrations of babies (with a full set of hair!) in the womb. There was one image in particular, of twins, that resonated with me because I know how complicated a multiple birth pregnancy can be. My mother gave birth to triplets, and without modern medicine, would most likely not have survived. I felt a bit sombre thinking about the risk that pregnancy carries but grateful for the advances in medicine.

We came away from the visit with insight into how women’s issues were portrayed in historical texts, and with a deeper and more comprehensive understanding of how the issues of the past, present and future are all interlinked.

Thank you to all who came to our Family Day at Hampden Park!

Thank you to all who turned out to our Family Day at Hampden Park on Saturday!

There were around 70 people who attended and it was an excellent opportunity for old friends to come together and for new friends to be made.

We were given a tour of the 52,063-seat stadium and got to explore the Hall of Fame and Football Museum. FIFA on the Xbox proved to be a popular museum exhibit!

Following the excitement of the museum, we went upstairs to the Millenium Suite and got to enjoy the panoramic views of the stadium over a tasty lunch.

While on the tour, we were given the chance to kick a ball into a goal and have the speed recorded. Teamophilia Scotland has some strong kickers with speeds in excess of 45km/hr recorded!

If you were unable to make it on Saturday, take a look at our Events calendar for our upcoming events. We hope to see you at one of our events soon!

Inspiration aplenty at Glasgow Practical Sewing Session


We had a fantastic time yesterday at the practical sewing session in Glasgow where a flurry of ideas and inspiration floated about in abundance.

For inspiration, we used the eclectic fabrics from the D’Ambrosio family, quilting magazines and the corners of our collective imaginations!

You don’t need to be an expert at quilting to participate in this collaborative project. It can really be as simple as finding a printed panel and personalising it yourself.

We’ve extended the deadline to take part in the Quilt Project to November 17, so it’s not too late to get involved!

The next practical sewing session will be held on level 3 at our office in Edinburgh on November 11, between 11:00am-2:00pm. Register for the session now. 

Don’t worry if you can’t make the session as we will organise another session for Glasgow and Edinburgh in January, before the January 31 deadline.


International Day of the Girl Child


Today is International Day of the Girl Child and this year’s theme is: EmPOWER Girls: Before, during and after crises.

“Every 10 minutes, somewhere in the world, an adolescent girl dies as a result of violence. In humanitarian emergencies, gender-based violence often increases, subjecting girls to sexual and physical violence, child marriage, exploitation and trafficking. Adolescent girls in conflict zones are 90 per cent more likely to be out of school when compared to girls in conflict-free countries, compromising their future prospects for work and financial independence as adults.” 1

These horrifying statistics paint a bleak picture for women and girls around the world. There are international efforts to fight for the rights of women and girls and improve their situation. Here at Haemophilia Scotland, we have a women’s group that meets regularly. It is an empowering forum for women to get together and discuss the issues affecting them and offers a space for women to support each other.

The Women’s Group recently launched a Quilt Project, which is a collaborative, worldwide effort where women with a bleeding disorder, or people who know women with a bleeding disorder, are invited to sew a panel which represents how bleeding disorders have affected their lives. Collectively, these panels will make up a special and uniquely-designed quilt that will be something tangible that represents how the Women with Bleeding Disorders community feels. You can register to take part in the quilt project here.

We will continue to make every effort to support and empower the women in our community.

« Older Entries