Category Archives: International

Let us know if you would like to attend the WFH Congress in Glasgow, May 20-24.

Don’t miss out on a once-in-a-lifetime opportunity!

The 2018 WFH Congress is coming to Glasgow.

This is the first time that Congress has been hosted in the UK and is a special and unique opportunity for you to attend this worldwide gathering. It’s the largest international meeting for the global bleeding disorders community!

You will meet industry experts, hear the latest from the pharmaceutical companies, meet other people from the international bleeding disorders community and so much more.

We think this is something you would not want to miss!

We currently haven’t got a budget for the registration costs or accommodation costs of attending the Congress. We ask if you need a bit of financial assistance and if you would like to attend for the whole of Congress, or if you are thinking about attending, please let us know by completing the below form by March 21. We can’t promise anything, but we are hoping to get funding so we can get as many people attending as possible.

This is an opportunity not to be missed!


#PressForProgress for women with bleeding disorders on #IWD2018

Today is International Women’s Day and Haemophilia Scotland is highlighting the important work of women around the world who are fighting for diagnosis and access to treatment for women with inherited bleeding disorders such as von Willebrands.  Working together on gender equality in treatment is integral to our partnerships with our friends in Kenya and Malawi.

To watch the full videos of this panel discussion of 5 different von Willebrand disease outreach programs and the keys to their success, and for hundreds more bleeding disorder resources, go to

The Haemophilia Scotland Women’s Group is proud to be hosting the Women’s Booth at the WFH Congress in Glasgow this May.  The booth will be showcasing amazing work from all over the world and providing a place for women with bleeding disorders to meet and exchange ideas.

Find out more about,


Make a difference for women at Congress

The Women’s Booth at the World Federation of Haemophilia Conference in May this year is, as some of you know, being hosted by Haemophilia Scotland.  Many of you are already aware and participating in our ongoing quilt project which will be displayed there.

Working in partnership with Glasgow Haemophilia Centre, we thought it would also be a nice gesture to recognise that no matter how little we have, some women and girls in the world have much less, particularly of the basic things we come to take for granted.

In many of the international communities, item such as pants, socks, sanitary wear, deodorant, shampoo, toothpaste, toothbrushes etc are luxury and commonly non existent items for many women.

We would like to collect some of these items and make them available to anyone who needs them during the conference and anything unused thereafter be sent to women and girls in Malawi and Kenya as part of Haemophilia Scotland’s ongoing programmes in these countries.

If you can and would like to donate any of the items mentioned above (or any other small items you can think may be useful) which could go into a small “goodie” bag for these girls and women, these are being collected at the Glasgow Haemophilia Centre and the Haemophilia Scotland Office.

Let’s make life a wee bit more comfortable for these girls and women with a great Scottish welcome!

If you wish any further information regarding this, please contact Nancy Brodie at the Glasgow Haemophilia CCC on 0141 211 5127.


Panels coming together for the Quilt Project

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Ideas were bountiful yesterday at the sewing session in Glasgow and much progress was made on our panels.

Our honorary President, Susan Warren, brought along some beautiful fabric from Malawi which will make up part of the backing of the finished quilt, as well as some of the leaves that will go on the tree centrepiece. This fabric symbolises the strength of the partnership between Haemophilia Scotland and our friends in Malawi and will be a nice addition to the quilt.

So far, we’ve received panels from the USA, India, England and Scotland and look forward to receiving more in time for the January 31 deadline. When you’ve finished your panel, please send it to our office:

Haemophilia Scotland
Fourth Floor, Hayweight House
23 Lauriston Street
Edinburgh EH3 9DQ

We’re hoping to put together a book that would accompany the quilt which would give a bit more information about each of the panels. Would you please include a photo of yourself and a paragraph about you and what your panel represents and means to you.  Feel free to include this with your panel when you send it in, or you could separately send it to

We are very excited to see your panels and what the end result of this international collaborative effort will look like!

Remembering on World AIDS Day


This World AIDS Day, Haemophilia Scotland is remembering those we have lost to the virus and thinking of their families and friends.  We are also thinking of our members who fight the virus on a daily basis.  Our long term survivors and their loved ones are living with the consequences of the contaminated blood disaster.

World AIDS Day is an international day to remember those who have died because of AIDS, to prevent new cases of HIV and to stand in solidarity with people living with the virus.

This year, charity partners and NHS partners are challenging us with the question of “What will you do?

  • What will you do to remember those who have died because of AIDS?
  • What will you do to prevent new cases of HIV?
  • What will you do to challenge stigma and prejudice?

One of the ways that we remember those who have died because of AIDS is through the Contaminated Blood Memorial Fund. The Fund is bringing bereaved families together to plan, and raise money for, a lasting memorial to those who have died as a result of the contaminated blood disaster in Scotland.

To contribute to the Memorial Fund, you can:

  • Donate online at
  • Text CBME23 to 70070. The standard donation is £10 but you can give less or more by adding an amount to your text. For example, to give £20, you text “CMBE23 £20” to 70070.

Thinking of our international friends on St Andrew’s Day

Russian Visit

Richard Lyle MSP and the then First Minister, Alex Salmond, meet the Russians delegation at the Scottish Parliament during their stay in Scotland. Also featured are Haemophilia Scotland Chairman Bill Wright and our Honorary President, Susan Warren, who organised the Russian group’s visit and was our Vice-Chair at the time. 

St Andrew isn’t just the patron state of Scotland, he is also the patron saint of Barbados, Romania, Russia, and the Ukraine.

So today seems like a good moment to look back to 2013 when Haemophilia Scotland played host to a group of about a dozen young Russian men with bleeding disorders.

They were successful finalists in a competition where the prize was a two-week visit to the UK. The once-in-a-lifetime opportunity enabled about many of them to travel abroad for the first time.

They spent time in London and Scotland, meeting other people affected by bleeding disorders and enjoying new experiences. While in Scotland they visited the Scottish Parliament in Holyrood, where they met First Minister Alex Salmond (pictured above). In Inverness they took part in a traditional ceilidh. Susan Warren looked after the group throughout their time in the UK and made them very welcome.

We were a relatively new charity at the time but have maintained our commitment to playing our part in the international family of bleeding disorders charities.  That is one of the reasons we are so excited to have the WFH Congress coming to Glasgow in May next year and are delighted that our Women’s Group will be hosting the Women’s Booth at the conference.  We are particularly proud of our recent Malawi Diagnosis Project with our friends in the Society of Allied Bleeding Disorders in Malawi too.

If you’d like to know more about how bleeding disorders are experienced in other countries, these are the patient organisations in those who share Scotland’s national saint.


Inspiration aplenty at Glasgow Practical Sewing Session


We had a fantastic time yesterday at the practical sewing session in Glasgow where a flurry of ideas and inspiration floated about in abundance.

For inspiration, we used the eclectic fabrics from the D’Ambrosio family, quilting magazines and the corners of our collective imaginations!

You don’t need to be an expert at quilting to participate in this collaborative project. It can really be as simple as finding a printed panel and personalising it yourself.

We’ve extended the deadline to take part in the Quilt Project to November 17, so it’s not too late to get involved!

The next practical sewing session will be held on level 3 at our office in Edinburgh on November 11, between 11:00am-2:00pm. Register for the session now. 

Don’t worry if you can’t make the session as we will organise another session for Glasgow and Edinburgh in January, before the January 31 deadline.


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