Category Archives: Support

A visual for those who missed the Youth Go Karting Day

The Youth Go Karting Day was a huge success and was not short on fun or competitiveness.

See it to believe it!

Teens knock the wind out of the track at Knockhill

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Thank you to all who turned up for Go Karting at Knockhill on Saturday! We had a brilliant time out on the track racing against each other.

It had been a while since the last youth event we’ve organised so it was an excellent opportunity to get the teens together to do something fun and build friendships.

After an hour of competitiveness, speed and multiple crashes into the tyre barriers (everyone crashed at least once!)  we ate lunch and had a chat about the types of events teenagers with a bleeding disorder would want to attend. We received plenty of feedback, but if you’re a teenager and you have ideas for events that you would be keen to go along to, then please let Alex know at alex@haemophilia.scot or 0131 281 7366.

In addition, we discussed setting up a WhatsApp group for teenagers with a bleeding disorder so they can keep in touch with their peers and discuss ideas for future events. Again, if you’re keen and a teenager, then please let Alex know and we can add you to the WhatsApp group.

There’ll be many more opportunities in 2018 for teenagers to get together. We’ll keep you posted with all upcoming events!

Guest blog: Darren Ford on his fundraiser skydive for Haemophilia Scotland

Darren Ford is the Facilities Co-ordinator at our Edinburgh office and raised just over £500 for a fundraiser skydive for Haemophilia Scotland. Contact Glenda at the office if you wish to do your own fundraiser on behalf of Haemophilia Scotland.

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Darren Ford , feeling relieved, with his tandem instructor following his brave leap from the plane.

After speaking with some of the lovely hard working staff at Haemophilia Scotland, I signed myself up for Skydive to raise some funds to support the great work they do. Now I should probably mention at this point I have a fear of heights so perhaps not the smartest move I’ve made.

The whole process was really easy, made more so because Haemophilia Scotland team were so helpful, along with the staff running St Andrews Skydive. It was intended to be a Santa Skydive but due to bad weather along with my luck we had to reschedule a few times.

We managed to finally get the jump completed on the 27th August 2017. I can honestly say it’s one of the best experiences I’ve ever had, and its all for a good cause! It’s no where near as bad as I thought it would be and it was highly exhilarating. I managed to raise over £500, and I would like to take this opportunity to thank everyone that donated. I hope you enjoy the video!

Inspiration aplenty at Glasgow Practical Sewing Session

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We had a fantastic time yesterday at the practical sewing session in Glasgow where a flurry of ideas and inspiration floated about in abundance.

For inspiration, we used the eclectic fabrics from the D’Ambrosio family, quilting magazines and the corners of our collective imaginations!

You don’t need to be an expert at quilting to participate in this collaborative project. It can really be as simple as finding a printed panel and personalising it yourself.

We’ve extended the deadline to take part in the Quilt Project to November 17, so it’s not too late to get involved!

The next practical sewing session will be held on level 3 at our office in Edinburgh on November 11, between 11:00am-2:00pm. Register for the session now. 

Don’t worry if you can’t make the session as we will organise another session for Glasgow and Edinburgh in January, before the January 31 deadline.

 

International Day of the Girl Child

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Today is International Day of the Girl Child and this year’s theme is: EmPOWER Girls: Before, during and after crises.

“Every 10 minutes, somewhere in the world, an adolescent girl dies as a result of violence. In humanitarian emergencies, gender-based violence often increases, subjecting girls to sexual and physical violence, child marriage, exploitation and trafficking. Adolescent girls in conflict zones are 90 per cent more likely to be out of school when compared to girls in conflict-free countries, compromising their future prospects for work and financial independence as adults.” 1

These horrifying statistics paint a bleak picture for women and girls around the world. There are international efforts to fight for the rights of women and girls and improve their situation. Here at Haemophilia Scotland, we have a women’s group that meets regularly. It is an empowering forum for women to get together and discuss the issues affecting them and offers a space for women to support each other.

The Women’s Group recently launched a Quilt Project, which is a collaborative, worldwide effort where women with a bleeding disorder, or people who know women with a bleeding disorder, are invited to sew a panel which represents how bleeding disorders have affected their lives. Collectively, these panels will make up a special and uniquely-designed quilt that will be something tangible that represents how the Women with Bleeding Disorders community feels. You can register to take part in the quilt project here.

We will continue to make every effort to support and empower the women in our community.

  1. http://www.unwomen.org/en/news/in-focus/girl-child 

Today is World Mental Health Day

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Today is World Mental Health Day and this year’s theme is workplace wellbeing.

Mental health problems can affect anyone, at any time of the year. Rich, poor; young, old; black, white; short, tall, it does not discriminate, even within our bleeding disorders community. We recognise our community has been affected enormously from the contaminated blood product infections and there have been ongoing consequences on our physical and mental health.

Having a bleeding disorder yourself, or in your family, can have an impact on your mental health. We are working to strengthen the bleeding disorders community in Scotland so people have the opportunity to meet more people who understand what they are going through.  Regularly touching base with friends or family to let them know how you are feeling can make a big difference.

We organise a busy events schedule for our community to bring everyone together. These events provide an opportunity to support your peers and they act as a forum to celebrate and discuss the things that are going well for us and to process and work through the not-so-great things. These events are important because we are a close-knit community that supports each other.

In the workplace, there can be fears around discrimination, anxiety about not being able to fulfil the duties of the role, or even concerns of how your colleagues may perceive you. These anxieties can be stressful and that’s why it is important to take time out of your day for a mental health break. We are working on a resource for you to assist you with knowing your rights in the workplace.

In our office today, we are taking a mental health break and are enjoying some delicious cake and tea. Why not take time out of your day for a mental health break, too? Go on, grab yourself a bit of cake!

A psychological support service pilot in Edinburgh is being rolled out to see how a national service could be provided.  This means that everyone can access the service.  We’ve had excellent feedback from people of all ages who have worked with Grainne and Nadine.  Talk to your Haemophilia Centre if you’d like to know more or be referred for a session. 

Shoals of people enjoyed our Shark Party

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Thank you to everyone who made the trip to come to our Deep Sea World Shark Party on Sunday.  We know several families travelled for hours for the chance to talk to other families with bleeding disorders… and come face to face with the sharks!

In fact we had well over 100 people on the day and the party room was always busy with people refuelling between reptile handling and the shark tunnel.  Next time it looks like we are going to need a bigger boat! A great problem to have for a rare conditions charity!

We are extremely grateful to all the staff at Deep Sea World who kept us well organised (we even had our own announcements) and gave some extremely informative talks. I know a lot of people really enjoyed their encounter with a corn snake or a bearded dragon. The staff were very impressed with how brave everyone was too.

If you’d like your photos from the day included in the slideshow above then please send them into dan@haemophilia.scot

 

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