The Andy Gunn Band is coming to Leith
Long time contaminated blood campaigner and Haemophilia Scotland member, Andy Gunn will be playing at Bar Brig in Leith on the 2nd of June.
You can support Andy by attending or by purchasing his music.
Category Archives: Events
Today is World Haemophilia Day
Glenda and Alex showing their support for World Haemophilia Day 2018
April 17 marks World Haemophilia Day. This year’s theme is “Sharing Knowledge Makes Us Stronger.”
The bleeding disorders community is filled with the first-hand knowledge and experience needed to help increase awareness, as well as to improve access to care and treatment. The WFH website has an extensive and informative resource base. http://elearning.wfh.org/
Another way of sharing knowledge is by meeting with others in our community. We organise a regular events programme which is FREE for members. It’s a fun and engaging way to make friends and share knowledge and experience.
To show support and raise awareness of bleeding disorders, landmarks across Scotland will be lit red. Haemophilia Scotland has received confirmation that these landmarks are are: Edinburgh Castle, Glasgow Science Centre, Horse on the M8, Jenners Department Store (Edinburgh), Melville Monument (Edinburgh), Ness Bridge, SSE Hydro, The Titan Crane and Marischal Hall (Aberdeen). Show your support and post photos on our Facebook page of you and your friends at the landmark. #WHD2018
See you at Landmark on July 14!
Our next Children and Families Event is at Landmark Forest Adventure Park in Carrbridge, on July 14 from 12:00pm-5:00pm.
Events are free for all members, and if you’re not a member already, all you need to do to join is fill in this simple membership form. There is no cost involved.
We will have lunch upon arrival and will have all afternoon on the roller coasters, waterslides and climbing walls for the serious adventure junkies. If you’re after something a bit more relaxing, there are optical illusions, an ancient forest to wander through and a butterfly house. There’s something for everybody.
Looking forward to seeing you there!
In the recent edition of The Wire, the date for this trip was incorrectly noted as July 17 so apologies for any confusion.
Let us know if you would like to attend the WFH Congress in Glasgow, May 20-24.
Don’t miss out on a once-in-a-lifetime opportunity!
The 2018 WFH Congress is coming to Glasgow.
This is the first time that Congress has been hosted in the UK and is a special and unique opportunity for you to attend this worldwide gathering. It’s the largest international meeting for the global bleeding disorders community!
You will meet industry experts, hear the latest from the pharmaceutical companies, meet other people from the international bleeding disorders community and so much more.
We think this is something you would not want to miss!
We currently haven’t got a budget for the registration costs or accommodation costs of attending the Congress. We ask if you need a bit of financial assistance and if you would like to attend for the whole of Congress, or if you are thinking about attending, please let us know by completing the below form by March 21. We can’t promise anything, but we are hoping to get funding so we can get as many people attending as possible.
This is an opportunity not to be missed!
Ice Hockey at Dundee Ice Arena
Are you sad that the winter Olympics are now over? If you are a Tayside patient or a member of Haemophilia Scotland, why not join our friends in Dundee to watch an ice hockey match at the Dundee Ice Arena on March 11?
See below for more details. Don’t miss out!
Visit to the Rare Books Collection at St Andrews
On February 5, a few of us visited the University of St Andrews’ Rare Book Collection to see how women’s issues are portrayed in historical texts. Thinking ahead to the Women’s Booth at Congress in May, a lot of attention and focus will be on the present and the future, so the purpose of this visit was to encapsulate the past with the present and future,
providing one holistic overview.
The University of St Andrews is the oldest of the four ancient universities of Scotland and the third oldest in the English-speaking world. Founded in 1413, we were fortunate to have the opportunity to pore over books from as far back as the 1500s.
In doing so, we were able to see how women’s issues were portrayed in historical texts, which highlighted how far medicine and technology has advanced since then, leaving us optimistic about the progression of modern medicine.
We all thought the visit was worthwhile and we share our thoughts on the visit below.
The incredible level of detail. Note that the veins look like branches – Inspiration for the centrepiece for the Quilt Project.
Joan: Joan was intrigued with the sharp detail of the drawings. MRI scanners and the like are recent inventions that provide us with images of the interior of the human body. Historically, any research on the human body was done post mortem and an artist would illustrate the findings.
Susan was interested in the forceps illustration.
Susan: I was interested in the lift the flap illustration in the text book dated 1830. Basically, the illustration showed how to use forceps. I had been very sick for 2 days before my son was born early at 38 weeks. My GP had the forceps ready as he thought I was too weak to deliver the baby alone. I had a great fear of anything like that and luckily my son was born without them. 4 months later he was diagnosed with severe haemophilia A, and I was diagnosed at the same time as having low factor levels. Lucky for us both! Later, my GP remarked at how relieved he was about not damaging my son with using the forceps. I added for me too – a reminder that childbirth is risky too for carrier mother.
Alex R was impressed with the printing
Alex R: Alex was really intrigued with how the illustrations were printed and was cleverly able to distinguish the difference between the laborious manual printing process of the 1500s to the machine printing of the 1800s.
Alex W: The book that stood out the most to me was a book from the 1500s that had illustrations of babies (with a full set of hair!) in the womb. There was one image in particular, of twins, that resonated with me because I know how complicated a multiple birth pregnancy can be. My mother gave birth to triplets, and without modern medicine, would most likely not have survived. I felt a bit sombre thinking about the risk that pregnancy carries but grateful for the advances in medicine.
We came away from the visit with insight into how women’s issues were portrayed in historical texts, and with a deeper and more comprehensive understanding of how the issues of the past, present and future are all interlinked.
Thank you to all who came to our Family Day at Hampden Park!
Thank you to all who turned out to our Family Day at Hampden Park on Saturday!
There were around 70 people who attended and it was an excellent opportunity for old friends to come together and for new friends to be made.
We were given a tour of the 52,063-seat stadium and got to explore the Hall of Fame and Football Museum. FIFA on the Xbox proved to be a popular museum exhibit!
Following the excitement of the museum, we went upstairs to the Millenium Suite and got to enjoy the panoramic views of the stadium over a tasty lunch.
While on the tour, we were given the chance to kick a ball into a goal and have the speed recorded. Teamophilia Scotland has some strong kickers with speeds in excess of 45km/hr recorded!
If you were unable to make it on Saturday, take a look at our Events calendar for our upcoming events. We hope to see you at one of our events soon!
Women’s Group Afternoon Tea in Glasgow
Thank you to those who joined us on Saturday for afternoon tea at the Carlton George Hotel in Glasgow. It was a brilliant opportunity to have a good catch up, talk about our panels for the Quilt Project, chat about the Women’s Booth, all over some mouth-watering snacks and litres of tea.
We were presented with some sandwiches, scones and an assortment of very sweet desserts which all went down a treat!
The “before” photo. We did a great job devouring the treats!
So many delectable treats to choose from!
The atmosphere was abounding in positivity and it was immensely encouraging and heartening to hear how everyone’s panels were coming along for the Quilt Project and to see how excited everyone is for the Women’s Booth.
Whilst at the afternoon tea, it was announced that the Glasgow Centre is going to donate £1,000 to the Women’s Booth at Congress. We are blown away by the kindness and generosity of the Glasgow Centre and are hugely thankful and appreciative of their support. This is a significant year with Congress coming to Glasgow and this donation will make a substantial difference. Thank you, Glasgow Centre!
Teens knock the wind out of the track at Knockhill
Thank you to all who turned up for Go Karting at Knockhill on Saturday! We had a brilliant time out on the track racing against each other.
It had been a while since the last youth event we’ve organised so it was an excellent opportunity to get the teens together to do something fun and build friendships.
After an hour of competitiveness, speed and multiple crashes into the tyre barriers (everyone crashed at least once!) we ate lunch and had a chat about the types of events teenagers with a bleeding disorder would want to attend. We received plenty of feedback, but if you’re a teenager and you have ideas for events that you would be keen to go along to, then please let Alex know at alex@haemophilia.scot or 0131 281 7366.
In addition, we discussed setting up a WhatsApp group for teenagers with a bleeding disorder so they can keep in touch with their peers and discuss ideas for future events. Again, if you’re keen and a teenager, then please let Alex know and we can add you to the WhatsApp group.
There’ll be many more opportunities in 2018 for teenagers to get together. We’ll keep you posted with all upcoming events!
Guest blog: Darren Ford on his fundraiser skydive for Haemophilia Scotland
Darren Ford is the Facilities Co-ordinator at our Edinburgh office and raised just over £500 for a fundraiser skydive for Haemophilia Scotland. Contact Glenda at the office if you wish to do your own fundraiser on behalf of Haemophilia Scotland.
Darren Ford , feeling relieved, with his tandem instructor following his brave leap from the plane.
After speaking with some of the lovely hard working staff at Haemophilia Scotland, I signed myself up for Skydive to raise some funds to support the great work they do. Now I should probably mention at this point I have a fear of heights so perhaps not the smartest move I’ve made.
The whole process was really easy, made more so because Haemophilia Scotland team were so helpful, along with the staff running St Andrews Skydive. It was intended to be a Santa Skydive but due to bad weather along with my luck we had to reschedule a few times.
We managed to finally get the jump completed on the 27th August 2017. I can honestly say it’s one of the best experiences I’ve ever had, and its all for a good cause! It’s no where near as bad as I thought it would be and it was highly exhilarating. I managed to raise over £500, and I would like to take this opportunity to thank everyone that donated. I hope you enjoy the video!