To mark World Haemophilia Day (17 April) this year, the World Federation of Hemophilia (WFH) are launching a series of videos about their humanitarian work around the world.
In this first, introductory video, they stress that there is more to their work than trying to take the clotting factor treatments that are available in the most developed parts of the world and making it available more widely. Treatment must be supported by strong patient groups, properly staffed Haemophilia Centres, diagnostics facilities, and commitment from Governments.
This is the approach that Haemophilia Scotland is taking with our own Malawi Diagnosis Project in partnership with our friends in Malawi, the Society for Haemophilia and Allied Disorders. We are working together to provide people in Malawi with laboratory diagnosis and access to specialist Haemophilia clinics. Well be posting more information about this project over the coming days and weeks.