The European Haemophilia Consortium (EHC) has announced that the scientific journal Haemophilia has published the results of their 2014 ‘Survey of coagulation factor concentrates tender and procurement procedures in 38 European countries.’
The key conclusion of the survey and article is that,
The involvement of both clinicians and patient organizations greatly improves the outcome of a tender or procurement process, as does the presence of a legal framework that governs the process.
This significantly strengthens the calls Haemophilia Scotland has been making for Scottish patients to be involved in all tendering and procurement decisions. We believe this is also a key lesson from the Penrose Inquiry evidence.