Melanie McColgan, Specialist Oncology Services & Clinical Haematology General Manager with NHS Greater Glasgow and Clyde (NHSGGC), has written to all patients registered with the Haemophilia Unit at the Glasgow Royal Infirmary (GRI) about the proposal to move the Unit.
The key points of the letter are,
- They are proposing to move the Haemophilia Unit so that a new discharge hub can be built.
- The Haemophilia Unit will stay on the GRI site.
- The proposed new accomodation is the first floor of the St Mungo building which is located off the link corridor behind the area occupied by Plastic Surgery. The area is accessible via a lift.
- The nearest access point to the St Mungo building is via Castle Street, or via vehicle access from Wishart Street where there are disabled parking spaces. They have agreed that additional disabled parking will be provided in the area directly behind the St Mungo building and that these spaces will be for patients accessing services within the St Mungo building.
- They recognise that the new location may not be considered as easily accessible as the present unit.
- They are committed to work with a small patient group to remove accessibility obstacles presented by the new location.
- They have no timescale for any move taking place, but undertake to keep patients and staff advised of developments.
The letter advises patient that The Haemophilia Society West of Scotland Group is holding a meeting for patients on,
Saturday, 23rd June at 11am
Ground Floor, Glasgow Royal Infirmary
Management and clinicians from the Haemophilia Unit have been asked to attend to talk about the rationale for the move and discuss the detailed plans. If you wish to attend this meeting, please e-mail John Prior, Secretary of The Haemophilia Society West of Scotland Group at firstname.lastname@example.org or text him on 07876 592 087.
Haemophilia Scotland are not currently taking part in the process. We have written to the Cabinet Secretary for Health and Sport, Shona Robison MSP, to object to NHSGGC taking the decision to move the Haemophilia Unit without consulting patients. We have asked the Scottish Government to call-in the decision and to trigger a full consultation so that all patients can express their views. We think it is a fundamental principle that no changes which affect people with bleeding disorders are made without involving them at all stages – “nothing about us, without us.” Until we hear back from the Scottish Government we don’t think it is appropriate for us to engage with the NHSGGC process which it is restricted to communications, engagement, and access issues.