The Edinburgh Service are currently looking at how Centres move patients from paediatric to adult services (known as Transition) and would value your input in designing a new approach. We will be holding a fun filled day focusing on this.
We are holding a ‘Puzzle Room’* event in Edinburgh.
The day will be divided into two parts: (1) escaping a ‘puzzle room’* to save the world, and (2) discussion about your experience of transferring care from paediatric to adult services. We are interested in hearing about what has gone well and not so well for you and your family in the transition of care. We would also like to ask you what you would like in a future service.
We are also keen to hear from your parents on how the process could be improved to better support them. Both of your input is greatly appreciated as the information gathered will help us to change the process so that it is helpful for people with haemophilia and their families in the future.
Who: Young People with Haemophilia who are preparing to or have recently transitioned from Paediatric to Adult services (e.g. 15 – 22 yrs approx) and a parent
When: Saturday 11th March 10am – approx 3pm (including lunch)
Where: Haymarket, Edinburgh (Meeting initially at Capital Business Centre, Canning Street and puzzle room at www.escapeteambuilding.co.uk)
Haemophilia Scotland have kindly offered to help with travel Costs
What do you need to do?
We have limited places for this event so will be operating a first come first serve basis. If you or your parent would like more information about the event or would like to book a place please telephone the Edinburgh Centre on 0131 242 1270 and speak with Gráinne O’ Brien or Susan Hook.
We look forward to seeing you in March.
*What is a puzzle room?
It is a team game. The goal of the game is to escape a locked room within 60 minutes. Your team must solve many puzzles, brain teasers and identify clues. Using your powers of observation and problem solving you and your team will work together to solve the problems and escape the room.