Yesterday’s (23.10.14) visit to the Haemophilia Unit at Yorkhill was incredibly useful.
Aileen Gibson was very generous with her time. We talked about plans to move to the new hospital in June 2015. I will post more about this soon but the basic message is that Haemophilia Services will run the same way and the unit will have roughly the same amount of space.
I also heard about the interesting work being done to help teenagers transition to adult services, including input from a consultant with a specialism in adolescents. It was also encouraging to hear that more and more people are using Haemtrack to record their treatment records. This data is combined with regular trough levels to provide really personalised prophylaxis.
I was also pleased to hear that our Parent Mentoring Project had been useful and that Aileen had already had good feedback on the Children and Family Day at Amazonia. It was great to hear her ideas about how we could develop these areas of work too.
Almost of all or our work relies heavily on the support and advice of the Scottish Haemophilia Centres. I really appreciate the opportunity to visit them and find out first hand how they are improving their services.