Advocacy Rare Conditions

Just two weeks until Rare Diseases Day

Are you ready for Rare Diseases Day?

Just in case you needed a reminder of what it is all about a new video has been released.

If you are inspired to get involved then you can Raise & Join Hands for Rare Diseases Day.  Everyone is been asked to upload photos of themselves raising and joining hands to symbolise people with all sorts of conditions from all over the work coming together to raise awareness of rare diseases.

If you can get to Edinburgh on the evening of the 24th Feb then there are still tickets left for the Rare Diseases Day Reception at the Scottish Parliament.  The event is free and is in the prestigious Garden Lobby.  However, you’ll have to hurray, the organisers are asking for everyone to register before the end of Feb 17th.  As we write that is less than 24hrs!

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