The Haemophilia Scotland office is now closed for the festive period. We will be open again on 3rd January. At this time of year we are particularly thankful to the staff of Scotland’s Haemophilia Centres. Many of them will be working throughout the Christmas and New Year to make sure that the vital treatment, care, and support they provide continues 356 days a year.
2017 has been an eventful year for us and the bleeding disorders community in Scotland. Haemophilia Scotland has more members, more volunteers, and more staff than ever before. We published the result of the Scottish Inherited Bleeding Disorders Needs Assessments which has helped us and the Scottish Inherited Bleeding Disorders Network focus on the needs of our community.
Our free children and families days have regularly had more than 100 people taking part and we have started our exciting new project for teenagers. Women’s Group has launched the Quilting Project and announced it will be hosting the Women’s Booth at WFH Congress in May 2018. It’s also been extremely welcome to see the Edinburgh Haemophilia Psychological Support Pilot rolling out to look at how the service could be provided throughout Scotland.
The Scottish Infected Blood Support Scheme has been launched which means that people affected by contaminated blood and blood products are getting more financial support than ever before. 2017 also saw the announcement of a UK wide Public Inquiry into the contaminated blood and blood products issue at which we hope to play our part in provide a strong voice for everyone affected in Scotland. The Scottish Clinical Review Group has also started its work which offers us a real opportunity to make a strong case for more support for those in the chronic (stage 1) category including widow(er)s. Many members also achieved a sustained virological response as the result of treatment for Hepatitis C this year.
In our international work were delighted to announce that, following the success of our partnership with our friends at the Society for Haemophilia and Allied Disorders in Malawi, we are WFH HOT Twinning Programme members in partnership with the Kenya Haemophilia Association. This will be an exciting area of work for us over the coming years as we work together to build organisational capacity.
Thank you to everyone who has raised money for us this year too. We’ve had everything from a fantastic charity gig in Thurso, to skydiving, and incredible range of other sponsored challenges. The money you raise makes a huge difference to a comparatively small charity like ours and we are incredibly grateful. A lot of you have also been raising money for the Contaminated Blood Memorial Fund for which we are also grateful.
We hope all our members, friends, and supporters in Scotland and around the world have an enjoyable Christmas and New Year. We look forward to working with you all to achieve even more in 2018 and seeing many of you at our regular events.
None of the work of Haemophilia Scotland would be possible without the grants we receive from the Scottish Government and the pharmaceutical companies who produce the clotting products our members news. We are very grateful for their ongoing support of our work.