It is possible for someone with a bleeding disorder to develop a reaction to the clotting factor products they are being treated with. This reaction prevents the treatment working properly and is called an inhibitor. Having an inhibitor means more painful bleeds into joints or tissue. How to prevent inhibitors is one of the most serious challenges in the treatment of bleeding disorders.
All bleeding disorders are rare. That means to study inhibitors properly countries need to work together. That is why Haemophilia Scotland is so pleased that the European Haemophilia Consortium (EHC) is launching a new European Inhibitors Network. The network aims to improve the treatment and care, as well as to increase the quality of life, of people with haemophilia and other bleeding disorders who have inhibitors.
To start the network they have launched a survey to help them to identify the needs of people with bleeding disorders and inhibitors. It takes just 10 minutes to complete
The EHC wants to hear from you if,
- If you have an inhibitor
- If someone in your family has a inhibitor
- If you help care for someone who has an inhibitor
To find out more about the survey or the new European Inhibitors Network contact Kristine Jansone, EHC Inhibitor Programme Officer,