The United Kingdom Haemophilia Centre Doctors’ Organisation (UKHCDO) has published it’s latest guidance on the diagnosis and management of von Willebrand Disease in the influential medical journal The British Journal of Haematology. We are pleased to see that Scotland was represented by Glasgow’s Campbell Tait.
The guidance reflects the increased understanding of the genetics behind von Willebrand Disease and how laboratory tests can help manage the condition.
At the European Haemophilia Consortium (EHC) Roundtable on von Willebrand Disease one of the most passionate discussions was about the use of prophylaxis. Therefore, it is particularly interesting to note that there is a strong recommendation on prophylaxis in the guidance.
Prophylaxis should be considered for recurrent bleeding in all types of VWD.
It was the strong view of the women with bleeding disorders represented at the EHC meeting that menorrhagia should certainly be considered as recurrent bleeding. It is very encouraging to see a specific reference to menorrhagia in the Prophylatic Therapy section of guidence that proceeds this recommendation.