Every year, at the end of February, Haemophilia Scotland joins other patient groups around the world to mark Rare Diseases Day.
A rare disease is any condition which affects less than 0.1% of the population – that is 5 or fewer people in every 10,000 people. All the bleeding disorders which affect our members are rare conditions.
There are thousands of recognized rare diseases, with more being identified every year. Research shows that 1 in 17 people will suffer from a rare disease at some point in their life. So each condition maybe rare on its own but together rare diseases affect a lot of patients and deserve a higher profile.
Rare Diseases Day is the last day in February every year.