Advocacy International

Scottish Parliament marks World Haemophilia Day 2014

Image © Scottish Parliamentary Corporate Body – 2012. Licensed under the Open Scottish Parliament Licence v1.0.

We are delighted that, thanks to Rhoda Grant MSP, the Scottish Parliament marked World Haemophilia Day with a motion.

The motion read:

“That the Parliament notes that 17 April marks World Haemophilia Day 2014, which aims to encourage those with bleeding disorders from all over the world to speak out about their illness and create change; welcomes this year’s focus on reaching out to young people all over the world with bleeding disorders so that they can develop strong leadership and assume key roles in the community; commends what it sees as the great work of the World Federation of Haemophilia, which is an international not-for-profit organisation that has worked to improve the lives of people with haemophilia and other inherited bleeding disorders for 50 years; understands that haemophilia is a rare disorder that about 1 in 10,000 people are born with; believes that there are over 2,300 people diagnosed with the disorder in Scotland; commends the work of Haemophilia Scotland, a national organisation set up in 2012 to support people and families who live with bleeding disorders such as haemophilia and von Willebrand disease, and recognises the World Haemophilia Day civic reception that it has organised in Inverness to mark the day.”

It was signed by a wide range of MSPs from all parties.

Kevin Stewart, Elaine Murray, Patricia Ferguson, Hanzala Malik, Margaret McDougall, Nanette Milne, Jamie McGrigor, Bill Kidd, Jackie Baillie, John Mason, Liam McArthur, Christina McKelvie, Mike MacKenzie, Anne McTaggart, Roderick Campbell, Dennis Robertson, Kenneth Gibson, Richard Lyle, Neil Findlay, David Torrance, Aileen McLeod, Malcolm Chisholm, Maureen Watt, Jackson Carlaw, Margaret McCulloch, David Stewart, Dave Thompson, Sandra White, Christine Grahame, Siobhan McMahon, Mary Scanlon, Colin Beattie, Gil Paterson, Stewart Maxwell

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