Today, Haemophilia Scotland received a letter from the Cabinet Secretary for Health and Sport, Shona Robison MSP.
We had raised concerns that the discretionary grants scheme of the new Scottish Infected Blood Support Scheme (SIBSS) was not going to be sufficiently changed from the Caxton Foundation and MacFarlane Trust system it is replacing. In particular that means testing has to be kept to a minimum and the need to keep things as simple as possible,
In her letter Shona Robison made it clear that the SIBSS is still in an early, transitional phase. The priority is making sure that it launches on time and is able to make payments and receive applications. However, she assured us that the approaches of the scheme will continue to evolve and adapt, informed by the needs of the people who be using it. She highlighted the complexity of the old schemes and the importance of people still getting the payments they are replying on.
We had also suggested that the new scheme be launched as the Maguire Scheme in recognition of the work of the late Frank Maguire campaigning on behalf of those affected by the contaminated blood disaster. However, this suggestion is not going to be taken forward to reduce the potential for confusion.
Haemophilia Scotland and the Scottish Infected Blood Forum (SIBF) will be meeting with Scottish Government officials next week to discuss how the scheme might evolve in the future. We are also holding a joint meeting for members in Glasgow on the 8th of April to keep everyone updated.