In January, Haemophilia Scotland and the Scottish Infected Blood Forum wrote to Shona Robison MSP to call for the widows at Chronic / Stage 1 to be entitled to the same lump sum payment as those who survived.
When the Scottish Government increased the Stage 1 / Chronic survivors lump sum from £20,000 to £50,000 the lump sum for widows was left unchanged. This leaves the households who lost someone before the changes £30,000 worse off than those where the infected person lived longer. In our letter we called for this issue to be address independently of the work of the Prof. Goldberg’s Clinical Review Group.
Though I agree it is important that we consider this further, I do not see the additional lump sum for Stage 1 widows and widowers as a separate issue to the ongoing review. In my view, this proposal should be considered in the light of the conclusions and recommendations of the forthcoming review.
It had already been agreed that the patient representatives on the Clinical Review Group will put forward companion recommendations covering how the report recommendations could be implemented financially. Last Friday, Haemophilia Scotland and the Scottish Infected Blood Forum met and agreed that we will be including the lump sum for Stage 1 widows in that report.