We have listened to your feedback and have two exciting new projects that have you in the heart and mind of them!
These projects have been designed to make it easier for people to support one another and to help anyone who wants to get more active to take the next step. They are in response to what you told us in the Needs Assessment and when you’ve given us your ideas on feedback forms. We hope you are as excited about these as we are!
The Haemophilia Scotland Pairing Project is a buddy programme for people affected by a bleeding disorder to connect you with support and information through mentoring-style pairing relationships.
The pairing project will not be traditional in the “mentor” and “mentee” sense. Instead, it will be equal. It will be two “buddies” coming together who can both learn from each other and share the highs and lows of being affected by a bleeding disorder.
The Haemophilia Scotland Self-Management Project aims to ensure that people affected by haemophilia and other rare bleeding disorders are fully supported in self-managing their condition, enabling you to develop an improved quality of life.
There are various ways you can get involved with the Self-Management Project. You could join the Project Steering Group, a focus group or be a champion for your local area to signpost other people in your area affected by a bleeding disorder to support available to them. We’ll train you!
We’ve received feedback from members suggesting we arrange a walking football event. We’ve listened to your feedback and have been in touch with walking football clubs in Glasgow and Edinburgh who would love to have us along.
>> Register (scroll to the bottom of the Events page)