About Our Events & Support Activities

Our Events & Support Activities programme for 2017 is now online, see here for more info!

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Haemophilia Scotland run free events throughout the year, and the programme is growing! Everyone living with or connected to bleeding disorders is welcome at our events. We know that mums, dads, brothers, sisters, partners, grandparents and friends of those with bleeding disorders are all affected by diagnosis, and you are a crucial part of our community too.  Our events and support activities run so we can share information, support each other and connect to medical specialists and professionals. We also hold events that raise awareness at science festivals and in other pop up public spaces (weather no object!).  Events are free for all members, and all you need to do to join is fill in this simple membership form, there is no cost involved.

All our events are free of charge for members and we can reimburse travel costs. Our events and support activities aim to be accessible for all. We provide details on accessibility for all our events, and can find out answers to any questions you may have.  We try to make sure that there is something for everyone and we want to run events that will interest the whole community. If you have an idea for an event or would like to talk to us, please get in touch on 0131 524 7286 / hello@haemophilia.scot or get in touch via Facebook. We would love to hear from you!

Contaminated Blood Memorial Events

We also list events that support the Contaminated Blood Memorial Fund. For more information on the Contaminated Blood Memorial Fund and events, please contact Leone: cbmemorial23@gmail.com

Events & Support Activities News and Development

• The women’s group was formed on 31^st January 2016, especially for women affected by von Willebrands Disease, haemophilia and those who carry the gene. We are delighted to announce that we will hosting the My Girl’s Blood Booth at WFH in Glasgow 2018, more details will follow very soon.
•  We are working with the Haemophilia Centres to develop a series of events for teens and young adults. These events will give you the opportunity to meet up for activity and creative days, and to have a say about transferring from paediatric to adult services.
• We will be starting to do events outreach in some centres very soon, or we can come to meet you. We will post all upcoming centre dates on this page, but please do get in touch if you would like to meet us individually or would like a home visit.
• A very important issue raised by our centres is the vital need for access to Health and Welfare Rights for all the community. We have been working on an initial strategy with CAB and the Edinburgh Centre to see how we can link up to provide advice on seeking health and welfare benefits, changes to benefits including transferring from DLA to PIP, filling out forms and appealing against decisions. We are building up info for all centre regions and will be making this available via web, leaflets and support packs during the new year.