Thank you to all who have come along and got involved in our events! We hope to see you all again soon!
If you require further information about any of the past events or anything discussed, please do not hesitate to get in touch. If you didn’t hear about the events programme from us it may be that you are not on our membership list or that we have incorrect details for you. If you think that might be the case, please ring 0131 524 7286 or email/ firstname.lastname@example.org to check your details or just complete our short online membership form. Don’t worry if you are already a member, if you are, we will just use the details from the form to update our records.
2019 Haemophilia Scotland AGM. Augustine United Church, Edinburgh, June 8, 11:00am-3:00pm
This is an interactive event for people affected by a bleeding disorder, young and old.
This event is FREE for members
The non-member fee is £10/person.
Haemophilia Scotland and Licketyspit have teamed up to create this fun day where your child/ren will learn through play and theatre some helpful messages, previously suggested by you, that will help them better understand living with a bleeding disorder.
Licketyspit is an Edinburgh-based theatre company, dedicated to creating meaningful theatre to engage the imaginations of early years children, to empower them and to inspire their play. Participation is for young and old alike!
We have a mobile creche operating, so at the commencement of the AGM at 1:15pm, children will have the opportunity to visit the National Museum before returning at 3:00pm to finish.
Important documents pertaining to the AGM can be found on our AGM page.
Joint Campaign Meeting. Queen’s Hotel, Perth, March 23, 1:30pm-4:00pm.
The purpose of the meeting is to provide an update on the ongoing public inquiry.
The venue is located within a short walking distance between the Perth Bus Station and Perth Train Station. The room is located on the first floor, however, there is a lift for those who require it.
World Haemophilia Day Evening Reception, Scottish Poetry Library, April 17, 6:00pm-9:00pm
The 17th of April every year is World Haemophilia Day.
Invite your family, friends and local MSP and MP along for our evening reception at 6:00pm-9:00pm. Guests include Hamish MacDonald, 2015-2017 Scottish Scriever, and Theresa Talbot, broadcaster and author of “Keep Her Silent.”
We’ll also hear from our member, Jay Gardner, on his experience of living with a bleeding disorder.
Save the date and join us as we mark World Haemophilia Day 2019!
TEMPLATE TO WRITE TO YOUR MP AND MSP
These are templates that you will need to personalise as their system blocks copied and pasted messages.
You can write to your local MSP and MP at https://writetothem.com
Teen Driving Lesson. Knockhill Racing Circuit, 20 April, 12:30pm-5:30pm
This event is for teenagers aged 13-17 affected by a bleeding disorder.
This event is FREE for members of Haemophilia Scotland.
The non-member fee is £75.00.
Living with a bleeding disorder doesn’t mean your ability to travel has to be restricted.
The transitioning from child care to adult care is such a critical time in the life of someone affected by a bleeding disorder.
The transition process is all about self management and care and becoming independent and responsible.
The purpose of this event is to equip teenagers with the confidence to drive which can open up a whole range of possibilities for them and put them on a path to being independent, young adults.
12:30pm: Meet for lunch (provided)
1:20pm: Driving course.
Due to the nature of the event, there are 16 spaces available on a first come, first served basis.