On 11th September, we went to the Colonnades at The Signet Library, Parliament Square, The Royal Mile, Edinburgh (from 1:30 – 4pm)
This gave us a great opportunity to review our objectives, and plan our upcoming activities (also a good excuse for cake and a catch up!).
As a result of our first two meetings, we produced a leaflet on women with bleeding disorders for the My Girl’s Blood Booth at the WFH Congress in Orlando July 2016. Our leaflet will aim to bring relevant information and awareness to health professionals, women and girls with bleeding disorders and the public. All our thanks go to Susan Warren for taking the leaflet to Orlando, and to Cheryl Nineff D’Ambrosio of My Girl’s Blood.
We have lots of other exciting ideas to discuss, and we are setting up working group for WFH Glasgow 2018. If you are not a member, and would like to join, please get in touch with me at emma@haemophilia.scot or 0131 281 0857 with your contact details.
The Haemophilia Scotland Women’s group was formed on 31st January 2016, especially for women affected by von Willebrands Disease, haemophilia and those who carry the gene.