When our son was diagnosed with Haemophilia after three weeks of bleeding, we both felt very confused and quite alone With three older boys who don’t have the condition and no known history of Haemophilia we felt there was a lot of information to take in whilst also coming to terms with having a child with a long term condition.
We joined the parent mentor programme as we have felt very isolated over the years with only each other and health professionals for support and would like to try and help other parents feel less alone by sharing our experiences with others.