I am a carrier, mother of, daughter of, sister of, aunt of and niece of people with Haemophilia. I grew up with my brother in constant need of trips to hospital due to his severe Haemophilia B. This set me in good stead for life with my own son who inevitably would be a sufferer.
I’ve seen how the treatment of Haemophilia has changed through the generations. An additional bit of information about my family, my son also has Global Developmental Delay which to be honest, has made Haemophilia a less of a worry for me.
I would like to meet other families who share similar experiences. I’ve known through life with a Special Needs child how invaluable it is to know that other people are on the same journey as you and face the same daily situations.
I would be happy to give any family or parent, support, a reassuring smile and/or share some life experiences with a child living with Haemophilia. I’m no expert, but I am a mother.