Many older medical text books say that Haemophilia and bleeding disorders only affect men. These days Haemophilia specialists recognise that bleeding disorders effect women too. However, old assumptions can take time to break down so raising awareness that bleeding disorders can effect women is an important part of our work.
There is also a lot of debate at the moment about the need to treat more women prophylacticly with clotting factor products. Some clinicians feel that there has been too much acceptance of heavy menstrual bleeding (Menorrhagia). They are asking whether this is treated with the same seriousness as bleeds into joints or tissue. You can find out more about this debate in our report from the EHC Roundtable Meeting on von Willebrand Disease.
There are several different groups of women who have issues with bleeding as a result of having a bleeding disorder.
Women with von Willebrand Disease (vWD)
vWD is just as likely to affect men as women. However, it is often women who experience the biggest impact on their life from having the condition. You can find out more about the condition on our von Willebrand Disease page.
Women with Haemophilia
Women with low clotting factor levels used to be called “symptomatic carriers” as they are often the mothers of boys with severe Haemophilia. However, more and more women now use the same terminology as would be used for a man with the same clotting levels – often describing themselves as having mild or moderate Haemophilia.
We would like to provide women with a bleeding disorder in Scotland with more opportunities to meet each other. Far too often we women don’t know anyone else outside their family who have a bleeding disorder. We have applied for funding to run these events. If you would be interested in taking part then please fill in the short survey below.