Following on from the recent Haemophilia Scotland Women’s Group Day Conference in Stirling the European Haemophilia Consortium has released a news film, Women and Bleeding Disorders, for worldwide distribution
This groundbreaking film was directed by Goran Kapetanović and gives a voice to the women with bleeding disorders to tell their stories and raise awareness of how they are affected.
“This film is decades overdue and a must-see for all members of the rare bleeding disorders community, be they patients, health care providers or other stakeholder,” says Amanda Bok, EHC CEO. “The stories bravely shared in this film, by different women from different regions but all with equally challenging journeys, paint an important picture of all that still needs to be done to better support these long-overlooked members of our community. We hope you help spread this film widely, help spread awareness and education, and join us in our work towards better recognition, diagnosis, treatment, care and quality of life for women and rare bleeding disorders in Europe.”
This film supports EHC ‘s commitment to women with bleeding disorders. Made in cooperation with the EHC’s Women and Bleeding Disorders Committee as well as medical and scientific advisory groups, the film underscores alarming statistics for women in the bleeding disorders community, namely that,
of 10% of all women who go to the doctor with heavy blood loss,
29% may have a bleeding disorder,
only 2% of them will get tested for a bleeding disorder.
This film begins to shed light on the ramifications and real-world experiences of women who live these statistics.
The film is part of the EHC Stories Series and continuation of work in partnership with director Goran Kapetanović (My Aunt in Sarajevo (2016), Kiruna-Kigali (2012) and The War Game (2017)). Kapetanović has directed and produced Haemophilia Stories and Inhibitor Stories with EHC.
“I was always interested to tell this story, learning how to understand human beings better in difficult situations. I am inspired and moved by personal stories from people I met making the documentary,” said director Goran Kapetanović. “I am grateful to be part of this important film project.”