A rare disease is any condition which affects less than 0.1% of the population – that is 5 or fewer people in every 10,000 people. All the bleeding disorders which affect our members are rare conditions.
There are thousands of recognized rare diseases, with more being identified every year. Research shows that 1 in 17 people will suffer from a rare disease at some point in their life.
Haemophilia Scotland works with individuals and families with a wide range of bleeding disorders. Although there are around 2,500 people in Scotland with a diagnosed bleeding disorder, there are an estimated 300,000 people with one of the 6,000 to 8,000 recognised rare diseases. So, we may be small on our own but together we have a very loud voice indeed! “Looks like rare’s not so rare.”