Awareness News

Today is #RareDiseasesDay 2016


All over the world, people are marking Rare Diseases Day.  The 29th of February is the rarest date in the calendar, which makes Rare Diseases Days on leap years particularly special.

Having a rare disease can be very isolating.  Individuals and families with bleeding disorders know how frustrating the lack of the rest of the world can be.  However, we are fortunate that Haemophilia is one of the better known of the rare conditions.  There are over 7,000 rare conditions and most people struggle to name more than two or three, let alone know much about them.

Once a year, Rare Diseases Day, gives us an opportunity to come together and show the world just how many people are affected by rare diseases.  The surprising fact is that 1 in 17 people will be affected by a rare disease or condition at some point in their life.

You can find out more about rare diseases on the following websites.

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