A Bleeding Disorders priority setting partnership (PSP) has been formed in conjunction with The James Lind Alliance and they are asking for your help.
The PSP is compiling a list of the 10 most important unanswered questions about bleeding disorders. Once finished, the list will be used to promote research and attract funding. It’s is very important that research goes into areas which have an impact on the lives of individuals and families with inherited bleeding disorders. That is why the PSP want to encourage those who live with the conditions to feed in their ideas and propose research questions.
All you need to do to take part is complete a short online survey.
The JLA is a non-profit making initiative which is a branch of the National Institute for Health Research (NIHR). The experience of the JLA with conducting PSPs is helping us shape and organise this project. You can find details about the JLA and other PSPs here.
Haemophilia Scotland is not a member of the PSP Steering Group but we are supportive of their objectives.