Advocacy Awareness Events Support


Tomorrow, Saturday 17th April, is World Haemophilia Day and the theme this year is “Adapting to change: Sustaining care in a new world.”

World Haemophilia Day is about bringing the global bleeding disorders community together. With the COVID-19 pandemic having a major impact on people with a bleeding disorder, that objective has never been more important. The world has changed greatly over the last year, but one thing hasn’t: we are still in this together.

To say that the last 12 months have been tough would be an understatement. Our familiar daily rhythms have been disrupted and replaced with uncertainty and we’ve had to learn to take each day as it comes. Here at Haemophilia Scotland, we’ve had to adapt and change some of our events and projects and how we engage with you because of the pandemic.

Through our collective efforts, we’re able to raise awareness of rare bleeding disorders this World Haemophilia Day. From adding our Facebook profile frame to participating in our Central Belter Challenge, we’ve been able to show that our small community is not so small when we get together and raise awareness.

Thank you to everyone who has pledged kilometres in our Central Belter Challenge. We established a route along the Union Canal from the Edinburgh CCC to the Glasgow CCC which is 100km. We’ve had close to 200km pledged so we’ve virtually been able to make it there and back! Can’t take part on Saturday? Well, you can still take part up until the 3rd of May! Register here.

So, however you are spending your day tomorrow, go feeling encouraged that although this past year has forced us to adapt to change, you are not alone and are a part of a bleeding disorders family.

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