The Scottish Inherited Bleeding Disorders Network is the national haemophilia committee for Scotland.
The network includes everyone involved in delivering the best possible treatment and care for people with bleeding disorders in Scotland. Patients, doctors, nurses, physiotherapists, data managers, National Services Division, the Scottish Government, and others all work side by side to drive continuous improvement.
There is a Steering Group to oversee all the work of the Network. Most of that work is delivered by three working groups.
- Stakeholder Engagement and Communications
- Best Practice, Policies, and Protocols
- Quality Improvement, Audit, and Data
Any interested patient or parent can join any of the working groups. All currently have patients who contribute to their work. There are rules in place to make sure patients are always represented on the Steering Group too.
If you would like to find out more or are interested in taking part in the network then please visit the network website.
Dan Farthing-Sykes would be happy to answer any questions you have about the network or getting involved on email@example.com or 0131 524 7286