There are currently eight members of our Board of Trustees. The minimum size of the board is four and the maximum is twelve. No more than four trustees can be co-opted.
Bill Wright – Chair
Bill lives with an inherited bleeding disorder and was the founding Chair of Haemophilia Scotland as an independent charity. He brings a wealth of experience in the third sector and takes a lead on the contaminated blood and blood products campaign. He also serves on the Steering Group of the Scottish Inherited Bleeding Disorders Network.
Gregor McInnes – Vice-Chair
Gregor has worn many hats in his IT career; Technical Lead, Architect, Relationship Manager, Strategist, Project Management, Support, Disaster Recovery, and Specialist. As a result, he adds some real digital savvy to the board. His experience operating his own consultancy are also very relevant to running a small charity such as ours.
John Dearden – Treasurer
John lives in the West of Scotland and has an inherited bleeding disorder. His work experience covers local authorities, property companies, facilities management and the health service where he worked as a chartered governance professional. He brings to the board knowledge of law, regulation, board procedures, risk and people management.
Joanne Kirkham – Secretary
Joanne is a carrier of Haemophilia, undiagnosed until after the birth of her twins in 2011. Her son has severe Haemophilia A with inhibitors. Joanne and her family have been active members of Haemophilia Scotland since 2013. She has participated in many of Haemophilia Scotland’s family and women’s projects, as well as family events organised by the European Haemophilia Consortium.
Joanne works as an Advocacy Worker for Kindred, a charity supporting parents of children with additional and complex needs. She is a passionate believer in supporting a person holistically, understanding the need to take into consideration a person’s physical, mental, and social well-being to assure they are fully supported.
She recently graduated with a first-class honours BA (Hons) Open degree, studying Young Lives, Parenting and Families and Approaches to Mental Health. Joanne also has a COSCA certificate in counselling skills.
Adam Davidson – Trustee
Adam is 38 and has mild type 2 von Willebrand’s. He wasn’t diagnosed until high school and feels fortunate not to have many issues as a result of his condition. He has a 6-year-old son who also has the condition and suffers from frequent nosebleeds and treatment. He joined the board because of his history of the condition and previous experience serving as a trustee with various other organisations. He is particularly focused on the needs of children with bleeding disorders, raising awareness for those who are undiagnosed, and fundraising. These are issues close to his heart and he brings a wealth of experience to the role.
Jay Gardner – Trustee
Jay is 23 and studying Acting. Over the past couple of years, he has been involved with Haemophilia Scotland, The Haemophilia Society and the European Haemophilia Consortium; all looking to pave the way for today’s youth affected by Bleeding Disorders. He has his own online web series on youtube called Diaries of a Haemophiliac where he advocates about living Haemophilia A.
Graeme Malloch – Trustee
I’m Graeme Malloch. I’m 40 years old and a dad to two young children. Having Haemophilia myself I have always been able to rely on Haemophilia Scotland being there for me for support when needed. In recognition of the great work that they do for people with bleeding disorders in Scotland, I was keen to join the board of trustees to try and give something back.
The role of trustees
The Trustees of any charity provide strategic direction and oversight.
They make sure that the charity protects our reputation, manages our finances responsibly, and is focused on achieving our charitable aims and objectives.
Specifically, a charity trustee must:
- Act in the interest of the charity. Trustees should put the interests of their charity before their own interests, or those of any other person or organisation.
- Operate in a manner consistent with the charity’s purposes. Trustees should carry out their duties in accordance with their governing document.
- Act with due care and diligence. Trustees should take such care of their charity’s affairs as is reasonable to expect of someone who is managing the affairs of another person.
- Ensure that the charity complies with the provisions of the 2005 Act and other relevant legislation.
We are very fortunate to have a diverse and dedicated Board of Trustees who work extremely hard to make Haemophilia Scotland as good as it can be.
Every year the third of trustees who have served longest since they were last elected step down. We usually seek to elect 4 trustees at each AGM and those stepping down are eligible to stand. In practice, this means there are usually new trustees joining every year but our members are able to keep experienced trustees on the board.
If you would like to know more about becoming a Trustee of Haemophilia Scotland, please contact our CEO, Dan Farthing for more details.
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