Living with a bleeding disorder can impair mobility, employability, financial stability, overall health and participation in daily life. Our work supports those diagnosed to:
- Reduce levels of anxiety and enable better coping mechanisms
- Increase confidence to manage their condition and live the way they want
- Reduce members financial vulnerability through improved levels of knowledge and better access to information
- Build friendships and a peer network who they can rely on for emotional support
What our members say who have attended our events:
“I understood that I am not alone and I can get help and support if I need it. I learned that I need to trust my son more and that it is not good to always be panicking.”
Recently-Diagnosed Weekend Attendee
“I had never met people with bleeding disorders before, except from our own family. It was interesting to hear individual stories and struggles to be heard about having a bleeding disorder.”
Over 50s Conference Attendee
“It was good to meet staff from Haemophilia Scotland whom I have spoken to. Also good to meet other individuals who have bleeding disorders.”
Community Connect Event Attendee
“It was fantastic to be able to attend today, getting to meet others living with a bleeding disorder. Knowing that there are people living locally who I can turn to for help and advice.”
Community Connect Event Attendee
“The classes have been a great way to get me back into a regular fitness regime. The classes are so easy to access, and I have enjoyed meeting others in the bleeding disorders community.”
Virtual Physio Project Participant
“Just having the ability to meet people all over Scotland who have the same condition as me…it’s also been good for my daughter because she’s been able to see that there are other girls having the same issues.”
Women’s Conference Attendee
Our Financial Wellbeing Service
We provide a free Welfare Benefits Service for Haemophilia Scotland members, delivered by our Financial Wellbeing Officer, Maxie Cobern‑Burke. The service ensures that anyone living with or affected by a bleeding disorder can access the financial support they are entitled to.
What the service offers:
- Benefits checks: Identifying any missing entitlements to maximise income.
- Support with applications: Guidance and hands‑on help completing benefit forms, which can often be complex and overwhelming.
- Help with appeals: Assistance with reconsiderations and appeals for unsuccessful claims, including speaking directly with Social Security Scotland or the DWP on behalf of members.
- Income maximisation: Budgeting support and signposting to debt advice where needed.
This service strengthens financial security for our community, reduces stress for families, and ensures no one misses out on essential support.
What our members say about our Financial Wellbeing Service
Maxie and this service have been absolutely life changing for me. I have two boys with severe haemophilia A, and at the time I reached out my marriage was broke down. I felt completely alone, frightened about how I could support my children and keep a roof over our heads.
When I came to Maxie, she immediately stepped in to help. She worked out all the benefits I was entitled to, sent me the information clearly, and reassured me that she would support me with any forms if I needed it. Because of her help, I was able to access everything me and my boys were entitled to. This meant we could stay in our home and live much more comfortably. I honestly could not have done it without her. Without Maxie, I know I wouldn’t be receiving half the support I am today. She has made such a huge difference to our lives, and I will be forever thankful. As for improvements, I can’t think of any—my experience was nothing but positive.