Category Archives: Events

Langstaff Inquiry launches website and consultation on Terms of Reference

The statutory Public Inquiry into infected blood and blood products, under Sir Brian Langstaff, has just launched it’s website at

The site gives some high level details about the Inquiry and a little more information about Sir Brian Langstaff.  However, the main content at the moment is a consultation on the Terms of Reference for the Inquiry.  The consultation was launched at the end of yesterday and runs until 26 April.

On the Inquiry website you will find,

Haemophilia Scotland will be working with independent campaigners in Scotland and the Scottish Infected Blood Forum (SIBF) to make a consultation response highlighting the Scottish dimensions to the consultation questions.  As well as using the Scottish Position Paper we published in October, we will be holding a joint members meeting so that everyone in Scotland can discuss the issues raised by the Inquiry consultation together.  We will publicise the details of that meeting as soon as it is confirmed.


Glasgow Centre’s “Girlie Day Out” a huge success

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Glasgow CCC held the “Girlie Day Out” event on Saturday (24th February) in the St Mungo Museum.  It was a great afternoon organised for female patients, carers of people with bleeding disorders and any of their family members.

The day was well attended and started with a bit of lunch and some very short informative discussions around:

  • Women and girls bleeding problems (Dr Catherine Bagot, Consultant Haematologist, Glasgow)
  • Talking Red (Lynn Wild, Talking Red Ambassador)
  • Women and Girls Malawi and Kenyan Experience (Susan Warren, Honorary President Haemophilia Scotland)

Following these discussions the afternoon went on to some fun activities – manicures, henna tattooing, decoupage… finishing the day with tea, cake and bollywood dancing!!

Feedback from the event has all been positive and was evidently stacks of fun for all who attended!!!

A big thank you to all staff at the Glasgow Centre and the speakers who gave up their Saturday for this event.

Visit to the Rare Books Collection at St Andrews

On February 5, a few of us visited the University of St Andrews’ Rare Book Collection to see how women’s issues are portrayed in historical texts. Thinking ahead to the Women’s Booth at Congress in May, a lot of attention and focus will be on the present and the future, so the purpose of this visit was to encapsulate the past with the present and future,

providing one holistic overview.

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The University of St Andrews is the oldest of the four ancient universities of Scotland and the third oldest in the English-speaking world. Founded in 1413, we were fortunate to have the opportunity to pore over books from as far back as the 1500s.

In doing so, we were able to see how women’s issues were portrayed in historical texts, which highlighted how far medicine and technology has advanced since then, leaving us optimistic about the progression of modern medicine.

We all thought the visit was worthwhile and we share our thoughts on the visit below.



The incredible level of detail. Note that the veins look like branches – Inspiration for the centrepiece for the Quilt Project.

Joan: Joan was intrigued with the sharp detail of the drawings. MRI scanners and the like are recent inventions that provide us with images of the interior of the human body. Historically, any research on the human body was done post mortem and an artist would illustrate the findings.


Susan was interested in the forceps illustration.

Susan: I was interested in the lift the flap illustration in the text book dated 1830. Basically, the illustration showed how to use forceps.  I had been very sick for 2 days before my son was born early at 38 weeks. My GP had the forceps ready as he thought I was too weak to deliver the baby alone. I had a great fear of anything like that and luckily my son was born without them. 4 months later he was diagnosed with severe haemophilia A, and I was diagnosed at the same time as having low factor levels.  Lucky for us both! Later, my GP remarked at how relieved he was about not damaging my son with using the forceps.  I added for me too – a reminder that childbirth is risky too for carrier mother.


Alex R was impressed with the printing

Alex R: Alex was really intrigued with how the illustrations were printed and was cleverly able to distinguish the difference between the laborious manual printing process of the 1500s to the machine printing of the 1800s.



Alex W: The book that stood out the most to me was a book from the 1500s that had illustrations of babies (with a full set of hair!) in the womb. There was one image in particular, of twins, that resonated with me because I know how complicated a multiple birth pregnancy can be. My mother gave birth to triplets, and without modern medicine, would most likely not have survived. I felt a bit sombre thinking about the risk that pregnancy carries but grateful for the advances in medicine.

We came away from the visit with insight into how women’s issues were portrayed in historical texts, and with a deeper and more comprehensive understanding of how the issues of the past, present and future are all interlinked.

Thank you to all who came to our Family Day at Hampden Park!

Thank you to all who turned out to our Family Day at Hampden Park on Saturday!

There were around 70 people who attended and it was an excellent opportunity for old friends to come together and for new friends to be made.

We were given a tour of the 52,063-seat stadium and got to explore the Hall of Fame and Football Museum. FIFA on the Xbox proved to be a popular museum exhibit!

Following the excitement of the museum, we went upstairs to the Millenium Suite and got to enjoy the panoramic views of the stadium over a tasty lunch.

While on the tour, we were given the chance to kick a ball into a goal and have the speed recorded. Teamophilia Scotland has some strong kickers with speeds in excess of 45km/hr recorded!

If you were unable to make it on Saturday, take a look at our Events calendar for our upcoming events. We hope to see you at one of our events soon!

Andy Gunn featured in media for new album, “Too Many Guitars to Give Up Now.”

Andy GunnLong time contaminated blood campaigner and Haemophilia Scotland member, Andy Gunn, has been in the media recently chatting about his life and journey and to promote his new album, “Too Many Guitars to Give Up Now.”

He featured on BBC Radio Scotland and BBC Radio 2:


BBC Radio 2 interview:

Following the release of the music video for “Warm Heart Blue,” The Telegraph wrote a lovely review:

Support Andy by purchasing his music or by seeing him live at one of the events below:

10/02/18  Blue Lamp, ABERDEEN
16/02/18  Stramash, EDINBURGH
17/02/18  Stereo, GLASGOW
23/02/18  Eden Court, INVERNESS
24/02/18  MacPhail Centre, ULLAPOOL
08/03/18  The Cluny, NEWCASTLE
09/03/18  The Whiskey Jar, MANCHESTER
10/03/18  The Magnet, LIVERPOOL
11/03/18  Half Moon Putney, LONDON
17/03/18  Smokestack, LEEDS
18/03/18  The Maze, NOTTINGHAM


Women’s Group Afternoon Tea in Glasgow

Thank you to those who joined us on Saturday for afternoon tea at the Carlton George Hotel in Glasgow. It was a brilliant opportunity to have a good catch up, talk about our panels for the Quilt Project, chat about the Women’s Booth, all over some mouth-watering snacks and litres of tea.

We were presented with some sandwiches, scones and an assortment of very sweet desserts which all went down a treat!

The atmosphere was abounding in positivity and it was immensely encouraging and heartening to hear how everyone’s panels were coming along for the Quilt Project and to see how excited everyone is for the Women’s Booth.

Whilst at the afternoon tea, it was announced that the Glasgow Centre is going to donate £1,000 to the Women’s Booth at Congress. We are blown away by the kindness and generosity of the Glasgow Centre and are hugely thankful and appreciative of their support. This is a significant year with Congress coming to Glasgow and this donation will make a substantial difference. Thank you, Glasgow Centre!

Panels coming together for the Quilt Project

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Ideas were bountiful yesterday at the sewing session in Glasgow and much progress was made on our panels.

Our honorary President, Susan Warren, brought along some beautiful fabric from Malawi which will make up part of the backing of the finished quilt, as well as some of the leaves that will go on the tree centrepiece. This fabric symbolises the strength of the partnership between Haemophilia Scotland and our friends in Malawi and will be a nice addition to the quilt.

So far, we’ve received panels from the USA, India, England and Scotland and look forward to receiving more in time for the January 31 deadline. When you’ve finished your panel, please send it to our office:

Haemophilia Scotland
Fourth Floor, Hayweight House
23 Lauriston Street
Edinburgh EH3 9DQ

We’re hoping to put together a book that would accompany the quilt which would give a bit more information about each of the panels. Would you please include a photo of yourself and a paragraph about you and what your panel represents and means to you.  Feel free to include this with your panel when you send it in, or you could separately send it to

We are very excited to see your panels and what the end result of this international collaborative effort will look like!

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