Author Archives: alexwhitteker

A visual for those who missed the Youth Go Karting Day

The Youth Go Karting Day was a huge success and was not short on fun or competitiveness.

See it to believe it!

Remembering on World AIDS Day

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This World AIDS Day, Haemophilia Scotland is remembering those we have lost to the virus and thinking of their families and friends.  We are also thinking of our members who fight the virus on a daily basis.  Our long term survivors and their loved ones are living with the consequences of the contaminated blood disaster.

World AIDS Day is an international day to remember those who have died because of AIDS, to prevent new cases of HIV and to stand in solidarity with people living with the virus.

This year, charity partners and NHS partners are challenging us with the question of “What will you do?

  • What will you do to remember those who have died because of AIDS?
  • What will you do to prevent new cases of HIV?
  • What will you do to challenge stigma and prejudice?

One of the ways that we remember those who have died because of AIDS is through the Contaminated Blood Memorial Fund. The Fund is bringing bereaved families together to plan, and raise money for, a lasting memorial to those who have died as a result of the contaminated blood disaster in Scotland.

To contribute to the Memorial Fund, you can:

  • Donate online at www.justgiving.com/contaminatedbloodmemorialfund.
  • Text CBME23 to 70070. The standard donation is £10 but you can give less or more by adding an amount to your text. For example, to give £20, you text “CMBE23 £20” to 70070.

Congratulations to Aileen Gibson on her retirement

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We want to wish Aileen Gibson a happy retirement today!

Aileen is a Haemophilia Specialist Nurse at the New Royal Hospital for Sick Children in Glasgow.

In December 2016, Aileen received the “Best Haemophilia Nurse Award” from the Haemophilia Society. She has had a pivotal role in helping countless families come to terms with a diagnosis and has guided them through all the challenges, bumps, scares, and scraps that young families with a bleeding disorder experience.  Aileen’s respect and admiration is widespread across Scotland:

“You have been a huge part of our lives for the last 10 years and I’m glad we had you as our nurse!!”

“Thank you for being the best nurse and you will be missed lots!”

“Wishing you an amazing retirement…Thanks for being our haemo guru. Really is a sad day for us mammies but a delightful one for you.”

“You have meant so much to so many families and will be fondly remembered in the community for decades to come.”

We thank you for your dedication and service, Aileen, and wish you all the very best for the future!

Teens knock the wind out of the track at Knockhill

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Thank you to all who turned up for Go Karting at Knockhill on Saturday! We had a brilliant time out on the track racing against each other.

It had been a while since the last youth event we’ve organised so it was an excellent opportunity to get the teens together to do something fun and build friendships.

After an hour of competitiveness, speed and multiple crashes into the tyre barriers (everyone crashed at least once!)  we ate lunch and had a chat about the types of events teenagers with a bleeding disorder would want to attend. We received plenty of feedback, but if you’re a teenager and you have ideas for events that you would be keen to go along to, then please let Alex know at alex@haemophilia.scot or 0131 281 7366.

In addition, we discussed setting up a WhatsApp group for teenagers with a bleeding disorder so they can keep in touch with their peers and discuss ideas for future events. Again, if you’re keen and a teenager, then please let Alex know and we can add you to the WhatsApp group.

There’ll be many more opportunities in 2018 for teenagers to get together. We’ll keep you posted with all upcoming events!

Guest blog: Darren Ford on his fundraiser skydive for Haemophilia Scotland

Darren Ford is the Facilities Co-ordinator at our Edinburgh office and raised just over £500 for a fundraiser skydive for Haemophilia Scotland. Contact Glenda at the office if you wish to do your own fundraiser on behalf of Haemophilia Scotland.

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Darren Ford , feeling relieved, with his tandem instructor following his brave leap from the plane.

After speaking with some of the lovely hard working staff at Haemophilia Scotland, I signed myself up for Skydive to raise some funds to support the great work they do. Now I should probably mention at this point I have a fear of heights so perhaps not the smartest move I’ve made.

The whole process was really easy, made more so because Haemophilia Scotland team were so helpful, along with the staff running St Andrews Skydive. It was intended to be a Santa Skydive but due to bad weather along with my luck we had to reschedule a few times.

We managed to finally get the jump completed on the 27th August 2017. I can honestly say it’s one of the best experiences I’ve ever had, and its all for a good cause! It’s no where near as bad as I thought it would be and it was highly exhilarating. I managed to raise over £500, and I would like to take this opportunity to thank everyone that donated. I hope you enjoy the video!

Inspiration aplenty at Glasgow Practical Sewing Session

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We had a fantastic time yesterday at the practical sewing session in Glasgow where a flurry of ideas and inspiration floated about in abundance.

For inspiration, we used the eclectic fabrics from the D’Ambrosio family, quilting magazines and the corners of our collective imaginations!

You don’t need to be an expert at quilting to participate in this collaborative project. It can really be as simple as finding a printed panel and personalising it yourself.

We’ve extended the deadline to take part in the Quilt Project to November 17, so it’s not too late to get involved!

The next practical sewing session will be held on level 3 at our office in Edinburgh on November 11, between 11:00am-2:00pm. Register for the session now. 

Don’t worry if you can’t make the session as we will organise another session for Glasgow and Edinburgh in January, before the January 31 deadline.

 

Huge thanks to the D’Ambrosio family

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The first bits of fabric have arrived at our office for the Quilt Project, thanks to the generous contribution of the D’Ambrosio family. There are all sorts of fun designs enclosed which will add to the beauty of the final quilt. Thank you, D’Ambrosio family!

It’s not too late to register to participate in the Quilt Project. Register here. We’ve extended the registration date to November 17 to allow for more people to participate in this collaborative project.

If you would like to work on your panels for the project together, then why not join us in Edinburgh or Glasgow for a practical sewing session where you can inspire each other for the design of your panel, and learn some handy sewing tips and tricks!

We look forward to seeing your contributions and seeing the quilt come together in time for Congress!

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