Edinburgh Haemophilia Centre

Essential NHS Information about hospital moves affecting you.

The Edinburgh Haemophilia and Thrombosis Comprehensive Care Centre provides a full range of services for children and adults with bleeding disorders.  All the staff at the Centre are very supportive of the work of Haemophilia Scotland and we are grateful for their help, support and advice.

Opening Hours

Monday – Friday 08:30 to 16:30
Clinics are held from 09:00 to 16:30

There is a 24 hours open access service for patients with bleeding disorders.  There is a haematology registrar and consultant on call at both the Royal Infirmary of Edinburgh (RIE) and at the Royal Hospital for Sick Children (RHSC) 24 hours a day.

If you require advice or treatment

During centre opening hours please telephone the Haemophilia Centre on 0131 242 1270

Out of Hours Adult Service

Please telephone the switchboard on 0131 536 1000 and ask to speak to the haematologist on call.  If attending hospital adults should attend Accident & Emergency at the Royal Infirmary of Edinburgh.

You should bring your Bleeding Disorder Information Card with you and show it to Accident and Emergency staff when you arrive.

Out of Hours Paediatric Service

Please telephone the switchboard on 0131 536 0000 and ask to speak to the haematologist on call.  If attending hospital, children should attend Accident & Emergency at the Royal Hospital for Sick Children.

Please bring your child’s Bleeding Disorder Information Card with you and show this to the staff in Accident and Emergency when you arrive.

Services

The Centre provides care and services for people with both acquired and inherited bleeding disorders.

• Regular adult and paediatric review clinics with staff experienced in haemophilia care.
• 24 hour emergency assessment and treatment for all patients with bleeding disorders.
• 24 hour advice service for patients, families, GPs, dentists and hospital doctors.
• Assessment and advice from adult and paediatric physiotherapists experienced in haemophilia care.
• Counselling from doctors and nurses experienced in haemophilia care.
• Co-ordination of treatment for people with bleeding disorders before and after surgery or dental procedures.
• Support and education on bleeding disorders for patients and families.
• Venepuncture and CVAD education for patients and families starting home treatment.
• Support and education on bleeding disorders to nurseries and schools.
• Supply of clotting factor products for use both in hospital and at home.
• Specialist coagulation laboratory diagnostic an monitoring service.
• Genetic counselling and specialist molecular genetics laboratory service.
• Access to Social Work services.
• Access to Psychology services.
• Obstetric/Haematology Joint Specialist Services – A weekly clinic is held in the Simpson’s Centre for Reproductive Health at the RIE.
• Orthopaedic Service – Patients with joint problems are assessed by Mr G M Lawson.  If surgery is required this can be performed at the RIE where Haemophilia Centre are available to co-ordinate care and treatment with clotting factors.  Mr A Murray runs a paediatric service at the RHSC.
• GI Liver Service – Professor P Hayes provides advice, assessment and treatment for patients with bleeding disorders and liver disease.
• HIV Services – Specialist care and treatment is provided by the Infectious Diseases Unit at the Western General Hospital.
• Dental Services – Provides specialist advice, assessment and dental treatment for adult patients requiring invasive dental procedures. Dr K Harley provides specialist dental care for children with bleeding disorders.
• Genetic Service – Genetic counselling and diagnosis is available for patients and their families through both the Haemophilia Centre and the South East Scotland Genetic Service at the Western General Hospital. Appointments at the Haemophilia Centre are available with any combination of Consultant Haematologist; Haemophilia Clinical Nurse Specialist; and Genetics Clinical Nurse Specialist.  Appointments are also available for patients and their families to be seen outside the Haemophilia Centre at the Western General Hospital (WGH). To request an appointment for genetic counselling please call 0131 242 1270.  To request an appointment for genetic counselling at the South East Scotland Genetics Service, please contact the service directly on 0131 651 1020.

Contact Details

The Edinburgh Haemophilia and Thrombosis Comprehensive Care Centre
Outpatient Department 1 (OPD1)
Ground Floor
The Royal Infirmary of Edinburgh
51 Little France Crescent
Old Dalkeith Road
Edinburgh
EH16 4SA

Telephone: 0131 536 1000 (Hospital Switchboard)
Direct Line: 0131 242 1270
Email: RIE.Haemophilia@nhslothian.scot.nhs.uk (please note that no clinical information should be sent by email)

Personal Health Data Information

The Centre keeps paper and computer records on all patients seen in the department; which are very valuable for patient care and audit.  They also maintain a database of patients registered with bleeding disorders. The Centre can provide an Information Leaflet explaining how your information is used.

The Haemophilia Centre also registers patients who have a diagnosed bleeding disorder, with their specific consent, on the United Kingdom Haemophilia Centre Doctors’ Organisation (UKHCDO) National Haemophilia Database (NHD).  The Centre can also provide you with a leaflet about the NHD.

Key Haemophilia Centre Staff

Haemophilia Centre Director: Dr Andrew Page
Consultant Haematologists: Dr Julia Anderson and Dr Andrew Page.
Paediatric Haematologists: Dr Matthew Howard-Jones, Dr Susan Baird and Dr Rosina Shujaat
Speciality Doctor: Dr Alasdair Gray
Deputy Charge Nurse: Bindu Abraham
Thrombosis Nurse Practitioner: Ewelina Korbanska
Haemophilia Nurse Specialist: Angela Davanna
Paediatric Nurse Specialist: Lucy Paterson
Clinical Support Worker: Jackie Gilchrist
Haemophilia Contract Coordinator: Clare Constance
Coagulation Factor Coordinators: Ellie Robertson and Jacqui Gillard
Senior Clinical Psychologist: Dr Gráinne O’Brien
Physiotherapist: Jenny Forsyth

Information correct as of December 2022