We are occasionally invited to participate in advisory boards, focus groups, and surveys to share the patient perspective. We’re looking for volunteers who are willing to contribute their experiences and insights when these opportunities arise. We aim to have diverse representation from across our community—whether you have haemophilia A, haemophilia B, von Willebrands, another bleeding disorder, or are a parent or carer of someone affected.
Join us as a Volunteer and become a Volunteer Patient Representative to help make a difference!
