Haemnet is conducting a survey that aims to understand more about the lived experience of people with von Willebrand disease and their families, including:
- Experiences of bleeding
- Impact on quality of life
- Access to different treatments
- Satisfaction with current treatment(s) and management
- Areas of unmet need
The survey is open to adults, aged 18 years or above, with a confirmed diagnosis of von Willebrand disease of any subtype or level.
For more information on how to participate, click on the link or email Dr Kate Khair: research@haemnet.com