Representatives of Haemophilia Scotland, the Haemophilia Society and the Scottish Infected Blood Forum were invited to meet with James Quinault, Director General at the Cabinet Office with responsibility for the Infected Blood Inquiry, along with colleagues.
The meeting on 20th January was to provide an update on recent developments and provide an opportunity to raise issues of concern.
James commented on the recent consultation on unethical research stating that the eligible dates for a supplemental claim were to remain as research undertaken between 1974 and 1983, but the institutions to be covered were to include additionally St Thomas’ Hospital, London; University Hospital Wales (Cardiff); Manchester Royal Infirmary; and Sheffield Royal Hallamshire Hospital.
On interim payments to estates of deceased infected being processed by the Infected Blood Support Schemes, payments had been made in 234 cases, 45 were approved and pending payment, 140 were under consideration and 163 were going through probate procedures. Previous queries regarding the right to pursue an estate through a chain of representation had been resolved.
The representatives present were invited to ask questions. The questions and the responses can be seen here.
The meeting illustrated that there are areas where the government has taken decisions behind closed doors without any consultation with the infected and affected community. There seems an unwillingness to change track on these decisions to the detriment of many of our community.
A further meeting with Nick Thomas-Symonds, Cabinet Office Minister is proposed for late January.