Tag Archives: women with bleeding disorders

Women’s Group Afternoon Tea in Glasgow

Thank you to those who joined us on Saturday for afternoon tea at the Carlton George Hotel in Glasgow. It was a brilliant opportunity to have a good catch up, talk about our panels for the Quilt Project, chat about the Women’s Booth, all over some mouth-watering snacks and litres of tea.

We were presented with some sandwiches, scones and an assortment of very sweet desserts which all went down a treat!

The atmosphere was abounding in positivity and it was immensely encouraging and heartening to hear how everyone’s panels were coming along for the Quilt Project and to see how excited everyone is for the Women’s Booth.

Whilst at the afternoon tea, it was announced that the Glasgow Centre is going to donate £1,000 to the Women’s Booth at Congress. We are blown away by the kindness and generosity of the Glasgow Centre and are hugely thankful and appreciative of their support. This is a significant year with Congress coming to Glasgow and this donation will make a substantial difference. Thank you, Glasgow Centre!

Upcoming events

Upcoming events

31st January, 1pm – Women’s Day at Blythswood  Square

Monte Carlo Room

We will be holding our first women’s group meeting on 31st January over lunch at the lovely Blythswood Square. This group is specially for women affected by von Willebrands Disease, haemophilia and those who carry the gene. Our first meeting will be a get together to link up and discuss ways of supporting each other. Spa treatments are available! Please let me know if you would like to book a place – fill in the form below or contact me via phone, email or facebook.

Events form for Women’s Day, 31st Jan

On International Women’s Day we say “Women have bleeding disorders too”

6 March is International Women's Day Historically, Haemophilia, and often other bleeding disorders too, have been thought of as only affecting men.  Haemophilia is often used as an example, in medical books, of a condition which is passed on by mothers and experienced by sons. As a result there is a constant need to raise awareness that women are affected by bleeding disorders too.  At a recent European Haemophilia Consortium (EHC) meeting on von Willebrand Disease highlighted the need to continue to improving treatment for affected women. In fact many women who carry the Haemophilia gene have low clotting factor levels themselves.  In the past, people in this situation have been referred to as symptomatic carriers but increasingly women are referring to themselves as having Mild Haemophilia. The most common bleeding disorder is von Willebrand Disease and it effects men and women equally. However, women with vWD tend to have more symptoms than men because of menstruation and childbirth. Girls may have especially heavy bleeding when they begin to menstruate. Women with VWD often have heavier and/or longer menstrual flow. This heavier menstrual flow can cause anemia (low levels of iron in the blood, causing weakness and fatigue). The stigma around menstrual bleeding can also make it difficult for some women to seek help.  Often people don’t talk about how heavy bleeding is which means some women don’t realise that their bleeding is unusual.  Every woman is different, and what is considered “normal” for one woman may be “excessive” for another. The average amount of blood lost during a “normal” period is 30-40 mL. Blood loss of 80 mL or more is considered heavy.  If you are thinking about discussing this with your GP it could be useful to complete an assessment chart during your next period. This is only a guide, but it can be a useful tool for you and your doctor to use when assessing your menstrual flow. Find out more about Haemophilia Scotland’s plans to provide support in Scotland for women with bleeding disorders in Scotland.