News Research

Opportunities to share your experience

There are a couple of studies underway just now that require insight and experience from the patient expert – YOU!

By taking part in the studies, you can have your voice heard and help influence the shape of outcomes and decision-making.

Haemnet is undertaking a research project to better understand the challenges faced in everyday life by those living with Factor VII Deficiency.

If you have Factor VII deficiency, you can share your lived experience by taking part in the survey.


There are x6 £50 Amazon vouchers to be won!

SOBI are organising a virtual patient advisory board on Tuesday 12th December from 4:00pm-6:30pm and are looking for people with Haemophilia A to take part. It will look at experiences, decisions around treatment and care and information/education needs and desires.

Participants will be compensated £60/hr for their time.

If you would like to take part, please complete the form below:

I have Haemophilia A(required)

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