Memorandum of Understanding with The Haemophilia Society

Many of our members are also members of The Haemophilia Society.  To make sure we have as constructive a relationship as possible we have agreed this Memorandum of Understanding (MoU) with The Haemophilia Society which sets out how we will related to each other.  The MoU has been ratified by the Board of Trustees of both organisations and signed by both Chairs.

Memorandum of Understanding (MoU) between The Haemophilia Society and Haemophilia Scotland

This Memorandum of Understanding recognises that The Haemophilia Society and Haemophilia Scotland are independent organisations with full autonomy of action.  However, both charities recognise that there are a number of people who are members of both organisations and the similarities in charitable objectives mean that a constructive working relationship is beneficial to both organisations.

Therefore, The Haemophilia Society and Haemophilia Scotland undertake to adhere to the following principles

1. To put the best interests of all people affected by bleeding disorder before all other considerations.
2. Only to ask the other organisation to undertake activity that would be reciprocated.
3. To respect the independence and interests of both organisations.

In order to achieve this, and as a matter of courtesy, The Haemophilia Society and Haemophilia Scotland will adhere to the following protocols.  None of these protocols are binding but provide guidance for how each organisation can expect the other to behave.

1. Public Policy:
   Share public policy statements, where appropriate, which affect the work of the other organisation. This implies no right to alter or veto a proposed statement. All statements provided under this provision will be treated as strictly embargoed.
2. Public Affairs:
   Haemophilia Scotland will inform the Haemophilia Society when it makes contact with the UK Government. The Haemophilia Society will inform Haemophilia Scotland when it makes contact with the Scottish Government.
3. Complementary working:
   Share details of activity within Scotland to avoid diary conflicts for members and identify potential for joint working.  Ideally, plans should be shared in the planning process before funding has been secured with sufficient time make alterations in the light of clashes.
4. Promotion of activities:
   Where one charity believes an activity of the other would be of interest or benefit to their members to advertise that activity to their members. This does not compel either organisation to advertise any activity of the other.
5. Membership:
   Make members aware that they can be members of both organisations.
6. Independent decision making:
   Respect the independent decision-making process of the respective organisations by refraining from unsolicited organisation to organisation lobbying.  This does not preclude the active involvement of an individual who is a member or both charities from engaging in the decision making processes of both charities.

Haemophilia Scotland recognises The Haemophilia Society as the National Member Organisation (NMO) of the World Federation of Hemophilia (WFH) and the European Haemophilia Consortium (EHC). The Haemophilia Society works actively to promote international links from within the UK with the wider Haemophilia Community and welcomes efforts by Haemophilia Scotland to engage constructively with these umbrella organisations.

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